#BCSM transcript

Healthcare Social Media Transcript

From:Mon Jul 09 18:00:00 PDT 2012
To:Mon Jul 09 19:15:00 PDT 2012

What is #BCSM? Who were the influencers during this time period? #BCSM analytics


Healthcare Conference  - Healthcare Tweet Chats  -  Healthcare Analytics

DrAttai
RT @stales: 1 minute until #bcsm
chemobrainfog
@stales Fingers are getting warmed up! #bcsm
apdolan
RT @stales: 1 minute until #bcsm
kimwhit
RT @apdolan: RT @stales: 1 minute until #bcsm
stales
GOOD EVENING #bcsm
stales
Everyone take a moment to introduce yourself and we'll get started shortly! #bcsm
DrAttai
@jackiefox12 we'll miss you Jackie! And really, not one uncalled for comment? Sounds like you've got great family and friends! #bcsm
stales
Good evening @drattai!! #bcsm
stales
@chemobrainfog hello, hello! #bcsm
DrAttai
hi everyone! Deanna Attai, breast surgeon from LA, co-moderating with @stales #bcsm
dianeradfordmd
@stales @DrAttai Hi Diane Radford here, breast surgeon from St. Louis #bcsm
JenniferAlhasa
Hi, everyone! So excited to join you tonight! I am a survivor & Cancer Coach. Can't wait to share in the energy with you! #BCSM
DrAttai
@dianeradfordmd Hi Diane - glad you could join us - hope summer is going well #bcsm
jenniegrimes
#bcsm Good evening all! Jennie Grimes, stage 4 fighter in Denver.
talkabouthealth
Hello Everyone! @DrAttai @stales @kimwhit @dianeradfordmd @chemobrainfog :) Looking forward to more people arriving too! #bcsm
rsm2800
Hi all. Dr. Bob Miller, breast ca oncologist Johns Hopkins. Gonna sit back & listen since I've not been on the receiving end... #bcsm
DrAttai
@JenniferAlhasa thanks for joining us, Jennifer - energy is one thing this group has plenty of! #bcsm
BCSisterhood
Brenda Coffee, breast cancer advocate San Antonio, TX. #BCSM
chemobrainfog
@jackiefox12 You are a serious anomaly!!! I'll give you some of my stupid remarks to call your very own! #bcsm
stales
Hi everyone, I'm Alicia 3x cancer survivor (hodgkin's and breast cancer) Co-moderating with @drattai tonight. #bcsm
teresamli
Good evening #bcsm
rsm2800
…but I've heard a few doozies in my time #bcsm
DrAttai
@jenniegrimes welcome to the chat, Jennie #bcsm
stales
Tonight - @jodyms is off, at a cancer event. We will miss her! #bcsm
talkabouthealth
Murray here from @TalkAboutHealth Cancer Q&A and support. #bcsm
NancysPoint
hello all. Nancy here. Educator, blogger, advocate two yrs post dx. #bcsm
DrAttai
@BCSisterhood @chemobrainfog glad you could both join us #bcsm
stales
Great to see some new faces tonight - and the usual crew too! #bcsm
Brandie185
Hello all. Brandie from Chicago here. #bcsm
DrAttai
@rsm2800 welcome! Hope you're back to normal, with power! #bcsm
chemobrainfog
@talkabouthealth Hi Murray!! #bcsm
dianeradfordmd
@DrAttai, very well. Just back from a week in Mexico! #bcsm
miamicrime
#bcsm sending everyone love from Miami
NancysPoint
Go Jody! Yes we will miss her here tho. RT @stales: Tonight - @jodyms is off, at a cancer event. We will miss her! #bcsm
davidkroll
Hi folks. Cancer natural product drug researcher and son of 27-yr breast cancer survivor. #bcsm
ABHuret
Greetings from NYC (and apologies to my tweep followers at large for the higher tweet volume next hour) #bcsm
DrAttai
@NancysPoint @Brandie185 @talkabouthealth great to see you all #bcsm
feistybluegecko
I'm Philippa, Scot based in Yangon, currently in Bangkok for med reasons, blogger and stage 3 #bcsm
BCSisterhood
Glad you & @stales are holding down the fort & AnneMarie's home from her trip. RT @DrAttai: @BCSisterhood @chemobrainfog #BCSM
DrAttai
@dianeradfordmd sounds fantastic #bcsm
miamicrime
#bcsm I'm struggling with emotional eating after treatment.
NancysPoint
@feistybluegecko so glad you could make it! #bcsm
stales
@feistybluegecko hello! #bcsm
BCSisterhood
@davidkroll 27 year survivor! Give your mom a great big hug from us. #BCSM
chemobrainfog
AnneMarie from New York, 5 yrs post tx, now blogging and advocating for change. This is a great start! #bcsm
teresamli
Good evening #BCSM
talkabouthealth
Hi @Brandie185 @rsm2800 @miamicrime @BCSisterhood @NancysPoint @davidkroll @ABHuret @feistybluegecko @jenniegrimes #bcsm
miamicrime
#bcsm i want chocolate all the time.
stales
Okay, tonight we're talking about "The Cancer Conversation" AKA --> People Say the Darnest Things!! #bcsm
Chemjobber
RT @davidkroll: Hi folks. Cancer natural product drug researcher and son of 27-yr breast cancer survivor. #bcsm
talkabouthealth
@ChemoBrainfog you are the best :) #bcsm
JenniferAlhasa
For sure! RT @BCSisterhood: @davidkroll 27 year survivor! Give your mom a great big hug from us. #BCSM
chemobrainfog
@feistybluegecko Hey Philippa... sorry to see you are in the hospital. BIG hugs xoxo #bcsm
rsm2800
@DrAttai Yes, finally, thnx. It took 6d for @awolff to get his back on. Lovely night in B'more 79 degrees & not too much humidity #bcsm
Brandie185
@DrAttai @talkabouthealth good evening! #bcsm
Brandie185
RT @stales: Okay, tonight we're talking about "The Cancer Conversation" AKA --> People Say the Darnest Things!! #bcsm
BCSisterhood
Nancy & Philippa, so great to see you both. RT @NancysPoint: @feistybluegecko so glad you could make it! #BCSM
DrAttai
@miamicrime thanks for joining us tonight #bcsm
Brandie185
We should make a book out of the stories we'll end up sharing tonight! #bcsm
nickdawson
Thats the way! Wow MT @rsm2800: Dr. Bob Miller, breast ca oncologist Johns Hopkins. Gonna listen since I’ve not been on receiving end #bcsm
stales
First question is coming up! #bcsm
nic_mclean
RT @stales: Okay, tonight we're talking about "The Cancer Conversation" AKA --> People Say the Darnest Things!! #bcsm
DrAttai
@feistybluegecko Phillipa sending love and support #bcsm
ABHuret
This topic could have it's own conference! #bcsm
DrAttai
RT @Brandie185: We should make a book out of the stories well end up sharing tonight! #bcsm
NancysPoint
@BCSisterhood good to see you as well. #bcsm
BCSisterhood
What! hospital! Oh, not! I missed that! RT @chemobrainfog: @feistybluegecko #BCSM
chemobrainfog
YES INDEED! RT @Brandie185: We should make a book out of the stories well end up sharing tonight! #bcsm
JenniferAlhasa
Woohoo! :) RT @drattai: @JenniferAlhasa thanks for joining us, Jennifer - energy is one thing this group has plenty of! #bcsm
talkabouthealth
Yes, we love you! RT @DrAttai: @feistybluegecko Phillipa sending love and support #bcsm
stales
Q1: What are the most memorable things people said to you when your were diagnosed or in treatment? #bcsm
StylewithClass
Isn't that the truth! "@Brandie185 We should make a book out of the stories we'll end up sharing tonight! #bcsm
chemobrainfog
You know it!!! RT @ABHuret: This topic could have its own conference! #bcsm
StylewithClass
Just wanted to say a quick hello. Might lurk a bit but am a bit tired after annual exam today...#BCSM
miamicrime
For those who don't know #bcsm is a group called breast cancer social media. Mon. 9 - 10 pm.
DrAttai
RT @stales: Q1: What are the most memorable things people said to you when your were diagnosed or in treatment? #bcsm
chemobrainfog
@Brandie185 that's so funny! I wanted to turn a blogpost abt this into an ebook & donate funds. #bcsm
stales
ROCK STAR! RT @rsm2800: Dr. Miller, breast ca oncologist Johns Hopkins. Gonna listen since I’ve not been on receiving end #bcsm
stales
@StylewithClass hope all went well today. #bcsm
DrAttai
@StylewithClass great to see you, Stephanie - hope everything is ok #bcsm
ABHuret
A1 "My aunt/mother/cousin had it and she died" (nominee for MOST unhelpful) #bcsm
chemobrainfog
Q1 "good cancer" "boob job" "mild chemo" (because I didn't lose my hair, just my brain) #bcsm
StylewithClass
@DrAttai Thanks, Dr. Attai. Met w/ new BC surg for annual exam....went very well. #BCSM
NancysPoint
Love a good listener! RT @stales: ROCK STAR! RT @rsm2800: Dr. Miller, breast ca oncologist Johns Hopkins. Gonna listen since I’ve no #bcsm
StylewithClass
@stales thanks - all went well....just emotional overload #typical #BCSm
JenniferAlhasa
A1: "If they can make a penis they can make a boob." #BCSM
BCSisterhood
Woman w/big breasts wanted 2 give me her tissue, my surgeon said it wasn't Jello we could transfer from 1 Tupperware bowl to another! #BCSM
Brandie185
A1: Some1 asked if I had a mastectomy. I said yes. She said (staring at my chest) "but you look like you still have boobs!" #bcsm
davidkroll
RT @miamicrime: For those who don't know #bcsm is a group called breast cancer social media. Mon. 9 - 10 pm.
NancysPoint
Q1 "If you're going to get cancer, at least you got the good kind." Heard that one more than once... #bcsm
Pinkribbonwendi
@stales I had a lady tell me "at least u had the good kind of cancer" (there's a GOOD KIND?!?) #bcsm
StylewithClass
I could write a book on what people said to me: 1st DX: 'well, u didn't have 'real' cancer b/c u didn't need chemo.' No comment! #BCSM
chemobrainfog
Sending you giant hugs. RT @miamicrime: #bcsm i want chocolate all the time. #bcsm
stales
Q1 recap: so, we've heard: "You got the good cancer", "You don't look sick", "Gee, my friend had BC and she died" ...... What else? #bcsm
StylewithClass
@Pinkribbonwendi @stales I had that same comment too - "the good one" OY. #BCSM
NancysPoint
@Pinkribbonwendi Yep heard that one too. #bcsm
ABHuret
A1 Not to be overshadowed by "Well, at least you have the "good" kind of cancer". #HUH?! #bcsm
chemobrainfog
@StylewithClass ARGGG #bcsm
Pinkribbonwendi
@stales I've had friends whose family/friends have actually expressed fear of catching cancer! #bcsm
Brandie185
A1 I was asked several times "So, um, did you, you know, lose hair EVERYWHERE?" Um, yes, b/c I want to talk about my pubic hair thanks #bcsm
chemobrainfog
@stales Boob job!!! #bcsm
BCSisterhood
Right! Pinkribbonwendi @stales I had a lady tell me "at least u had the good kind of cancer" (there's a GOOD KIND?!?) #bcsm #BCSM
yvonnewatterson
Q1.but you look just like ... well, you. #bcsm
stales
RT @Pinkribbonwendi: @stales Ive had friends whose family/friends have actually expressed fear of catching cancer! #bcsm
JediPD
Hard-hitting #bcsm folks today including @DrAttai @rsm2800 @dianeradfordmd @stales All in great hands.
ABHuret
A1: "Well at least you'll have a fabulous rack when you're done". <steam smoking from ears> #bcsm
feistybluegecko
@talkabouthealth @DrAttai @chemobrainfog @BCSisterhood Tks so much, been a rough time. but hey, no need to rush to work and miss #bcsm ;)
TeamR0XY
RT @DrAttai: Tonight on #BCSM - The Cancer Conversation - things people say and how to respond 9pm Eastern / 6pm Pacific cc @jodyms @sta ...
NancysPoint
Hubby was point blank asked, "So did they have to take 'em both off?" He was stunned. #bcsm
DrAttai
@JediPD glad you could join us - we're talking about "things people say" #bcsm
stales
q1: first day back to work after double mast w/ no recon: co-worker looked at me and said "what happened to your chest?" #bcsm
StylewithClass
And of course I am sure we all heard this one: "You don't look sick" - #BCSM
DrAttai
Oh, wow - I thought I heard it all but you guys have had to deal with some real jerks! #bcsm
BCSisterhood
@stales I've talked to several Hispanic husbands who think they can catch cancer from their wives. #BCSM
feistybluegecko
A1 one very good friend "oh but they have really fine tuned chemo these days so it is so much easier" aaaarghhh! #bcsm
Brandie185
A1: Weirdest thing: someone I had just met said "Well if you die and your dd needs someone to talk to, she can call me." Umm, WTF? #bcsm
chemobrainfog
I'm just going to say this: I am going to alternate between laughing hysterically and wanting to smash my laptop #bcsm
rsm2800
RT @chemobrainfog: I'm just going to say this: I am going to alternate between laughing hysterically and wanting to smash my laptop #bcsm
BCSMchat
RT @stylewithclass: And of course I am sure we all heard this one: "You don't look sick" - #BCSM
TeamR0XY
RT @stales: Okay, tonight we're talking about "The Cancer Conversation" AKA --> People Say the Darnest Things!! #bcsm
yvonnewatterson
RT @chemobrainfog: Im just going to say this: I am going to alternate between laughing hysterically and wanting to smash my laptop #bcsm
Pinkribbonwendi
@stales First time I went without my wig I had a customer scream "WHAT DID U DO TO YOUR HAIR!?!" me: "Got Cancer!" (she shut up) #bcsm
chemobrainfog
@Brandie185 OMG.... Send that person to me, I'll kick their ass for you.... #bcsm
BCSisterhood
RT @chemobrainfog: Im just going to say this: I am going to alternate between laughing hysterically and wanting to smash my laptop #BCSM
BCSMchat
RT @brandie185: A1: someone I had just met said "Well if you die and your dd needs someone to talk to, she can call me." Umm, WTF? #bcsm
DrAttai
@BCSisterhood there are definitely a lot of cultural biases / misconceptions - lots of room for education #bcsm
miamicrime
#bcsm I have been offered healing light by people who believe they can channel it and give it off with their hands
Brandie185
I hate to say it, but I looked like shit. And so I never heard the you don't look sick. I heard the opposite. Blech #bcsm
DrAttai
@chemobrainfog don't smash the laptop!! We need your input! #bcsm
yvonnewatterson
or the suggestion that it must be my fault in some way ... "Oh, didn't you go for your mammograms?" #bcsm
Brandie185
@chemobrainfog I know. Isn't that crazy? I wouldn't even think that, let alone say it! #bcsm
feistybluegecko
A1 one of my colleagues was astounded I had breast cancer, as married women don't get it - cultural aspect #bcsm
chemobrainfog
ARG RT @miamicrime: #bcsm I have been offered healing light by people who believe they can channel it and give it off with their hands #bcsm
StylewithClass
I got my wig b4 losing my hair....cried when I arrived: 87 yr old volunteer said: "when u compose yourself, come get me" #heartless #BCSM
Pinkribbonwendi
@stales forgot to introduce myself. I'm coming up on my 6th cancerversary & founded a BC support group. #bcsm
chemobrainfog
@DrAttai :) TY! #bcsm
ABHuret
A1 It really upset me when people said they would pray for me. It made me think they knew something I didn't ... #bcsm
stales
RT @Pinkribbonwendi: @stales forgot to introduce myself. Im coming up on my 6th cancerversary & founded a BC support group. #bcsm
DrAttai
MT @Pinkribbonwendi 1st time I went w/o my wig I had a customer scream "WHAT DID U DO TO YOUR HAIR!?!" me: "Got Cancer!" (she shut up) #bcsm
rsm2800
RT @ABHuret: A1 It really upset me when people said they would pray for me. It made me think they knew something I didn't ... #bcsm
BCSisterhood
Before a friend of mine died from breast cancer, someone told her she hadn't prayed hard enough! #BCSM
DrAttai
RT @feistybluegecko: A1 one of my colleagues was astounded I had breast cancer, as married women dont get it - cultural aspect #bcsm
stales
RT @DrAttai: @BCSisterhood there are definitely a lot of cultural biases / misconceptions - lots of room for education #bcsm
chemobrainfog
RT @ABHuret: A1 It really upset me when people said they would pray for me. It made me think they knew something I didnt ... #bcsm
Brandie185
A1: Someone said, upon hearing the news "So. You believe in God, right? Because I don't want to think about you going to hell." #bcsm
NancysPoint
Oh my! RT @miamicrime: #bcsm I have been offered healing light by people who believe they can channel it #bcsm
DrAttai
@StylewithClass wow... #bcsm
chemobrainfog
That is one I hate most. RT @BCSisterhood: Before a friend of mine died from breast cancer, someone told she hadnt prayed hard enough! #bcsm
ABHuret
Like I could 'pray' it away ... (no offense to anyone's religious beliefs, of course) #bcsm
stales
Q1: drumrolll..... shittiest comment to me ever: about to get first chemo, nurse can't find vein to get started, and says........ 1/2 #bcsm
Brandie185
{I also feel I need to add, all these strang things were said by people NOT close to me. They were, thankfully, wonderful} #bcsm
yvonnewatterson
then there are the people who say "I just know you'll beat this." What would they say if they thought I wouldn't ... #bcsm
talkabouthealth
UGH! RT @BCSisterhood: Before a friend of mine died from breast cancer, someone told her she hadnt prayed hard enough! #bcsm
TeamR0XY
Try being the pregnant bald chic in the chemo room or dr office. I always got questions & comments but most were positive. #bcsm
StylewithClass
@DrAttai it blew my mind....my parents were with me. I was floored. I wasn't concerned about losing my hair..but still digesting DX #BCSM
DrAttai
@yvonnewatterson sort of like first question to lung cancer patient - did you smoke- trying to find an answer but really placing blame #bcsm
stales
Q1: "If you just calm down, chemo would be alot easier. i don't know why you're all worked up" 2/2 REALLY? #bcsm
jenniegrimes
#bcsm "Wait, the breast cancer spread to your hip?! Does that mean another boob is growing there?" really?!?
JenniferAlhasa
I think most people say what they say from discomfort, to make themselves feel better. Most are not trying to be offensive or mean. #BCSM
chemobrainfog
@AdamsLisa and @ RennPatterson just both wrote excellent blogs about the prayer thing and "cope not hope" #bcsm
debmthomas
Q1 after my mastect my 'friend' asked me, "So, do you feel lopsided?" (I swear it's the truth) #bcsm
ABHuret
A1 Another winner: "You must not have eaten enough (fill in the blank)". Cause we all know about the weekly headlines! #bcsm
stales
ouch. RT @BCSisterhood: Before a friend of mine died from breast cancer, someone told her she hadnt prayed hard enough! #bcsm
stales
RT @DrAttai: sort of like first question to lung cancer patient - did you smoke- trying to find an answer but really placing blame #bcsm
DrAttai
@Brandie185 sometimes the comments from strangers are more compassionate #bcsm
StylewithClass
Ok...sorry to leave, definitely on breast cancer overload today...so, logging out.....thinking of you all. Take good care. #BCSM
BCSMchat
RT @abhuret: A1 Another winner: "You must not have eaten enough (fill in the blank)". Cause we all know about the weekly headlines! #bcsm
stales
RT @abhuret: A1 Another winner: "You must not have eaten enough (fill in the blank)". Cause we all know about the weekly headlines! #bcsm
stales
unreal! RT @debmthomas: Q1 after my mastect my 'friend' asked me, "So, do you feel lopsided?" (I swear it's the truth) #bcsm
STrudeauH_MedFT
@yvonnewatterson How about those that say "keep fighting, fight harder" As though you are choosing to do something different!? #bcsm
chemobrainfog
@stales I can't RT that but OMG.... #bcsm
ABHuret
RT @yvonnewatterson then there are the people who say "I just know you'll beat this." What would they say if they thought I wouldn't #bcsm
Brandie185
A1: How about the people who are "chemo is poison they give just to make money. Don't get it." #bcsm
NancysPoint
@debmthomas Lordy, that's kinda like mine, (did they take em both off?) #bcsm
debmthomas
Q1 people always commented on my hair as it grew back in, guess they figured it was a 'safe' topic? #bcsm
yvonnewatterson
I have found the kindness of strangers, this group included, has helped immeasurably. #bcsm
chemobrainfog
@StylewithClass Love to you, Stephanie!!! #bcsm
stales
MT @jenniferalhasa I think most people <speak> from discomfort, to make themselves feel better. Most arent trying to be offensive/mean #BCSM
BCSisterhood
Nurse from Hell when I told her I was severely allergic to pain med she was giving me: "Well let's hope it doesn't kill you." #BCSM
stales
RT @jenniegrimes: #bcsm "Wait, the breast cancer spread to your hip?! Does that mean another boob is growing there?" really?!?
debmthomas
yikes! “@NancysPoint: @debmthomas Lordy, that's kinda like mine, (did they take em both off?) #bcsm
DrAttai
RT @stales Q1: "If you just calm down, chemo would be alot easier. i don't know why you're all worked up" 2/2 REALLY? #bcsm
stales
@chemobrainfog yup. needless to say, I never saw that nurse ever again. #bcsm
chemobrainfog
And then, there is a cure in a lab somewhere. You know that, right? UMMMM, not a great idea to share such grassy knoll stupidity. #bcsm
DrAttai
@jenniegrimes wow again - lots of wow's tonight! #bcsm
feistybluegecko
so true - the kindness of strangers and support online balances the goofs of many #bcsm
NancysPoint
Now, of course, i hear it's over, right? things are back to normal, right? so comments keep coming. #bcsm
Brandie185
A1 "I was watching Doctor Oz. If you just drink green smoothies, you'll be fine!" Yeah. 100 bucks that's not how he'd treat his cancer #bcsm
talkabouthealth
So many misconceptions! RT @ABHuret "You must not have eaten enough (fill in the blank)" Cause we all know about the weekly headlines! #bcsm
DrAttai
RT @feistybluegecko: so true - the kindness of strangers and support online balances the goofs of many #bcsm
chemobrainfog
@stales I would have made her cement shoes for you. :) #bcsm
BCSisterhood
Agree but they also don't think.RT @jenniferalhasa I think most people speak from discomfort, arent trying to be offensive/mean #BCSM
stales
RT @chemobrainfog there is a cure in a lab somewhere. You know that, right? not a great idea to share such grassy knoll stupidity. #bcsm
Pinkribbonwendi
@stales REALLY?!? All worked up, huh? Hope you reported to the Doc! #bcsm
stales
RT @NancysPoint: Now, of course, i hear its over, right? things are back to normal, right? so comments keep coming. #bcsm
Brandie185
@JenniferAlhasa I agree. Which is why I usually just smile and nod to people. I think they mean well. #bcsm
NancysPoint
Absolutely! RT @feistybluegecko: so true - the kindness of strangers and support online balances the goofs of many #bcsm
stales
yay! RT @yvonnewatterson: I have found the kindness of strangers, this group included, has helped immeasurably. #bcsm
kimwhit
@JenniferAlhasa yes I think it's ignorance, discomfort, fear #bcsm
rsm2800
Some ppl are inappropriate/awkward b/c they think they "aren't allowed" to use a little humor. But sensitive use of humor helpful #bcsm
chemobrainfog
@Brandie185 Girlfriend, that's so true and I can't RT on stupid tweet chat but yes, SPOT ON abt the TV show docs. LOVE U! #bcsm
debmthomas
RT @Brandie185: @JenniferAlhasa I agree. Which is why I usually just smile and nod to people. I think they mean well. #bcsm
DrAttai
RT @Brandie185: @JenniferAlhasa I agree. Which is why I usually just smile and nod to people. I think they mean well. #bcsm
BCSisterhood
"You'll look back on those as some of life's little bumps." Little? They weren't that little! #BCSM
JediPD
Intelligence does not exist in a degree. Common sense is a rare sense, that's why ignorance speaks through stupid tones #bcsm
stales
Another favorite stupid cancer comment: "Do you have unresolved anger issues? I hear that causes cancer?" #bcsm
ABHuret
A1 The medical segments & headlines are the WORST! Eat broccoli, soy, green tea, etc. Makes people think you must have caused it. #bcsm
stales
RT @JediPD: Intelligence does not exist in a degree. Common sense is a rare sense, thats why ignorance speaks through stupid tones #bcsm
BCSisterhood
Kindness far exceeds stupidity. RT @yvonnewatterson: I have found the kindness of strangers this group included helped immeasurably. #BCSM
chemobrainfog
@rsm2800 YES! But if they would just let us lead for a second... so many times I was comforting those around me. #bcsm
Pinkribbonwendi
The discussion tonight in #bcsm is 1/2 making me laugh, 1/2 pissing me off! LOL #CancerSucks #ThingsPeopleSayToCancerPatients
stales
@chemobrainfog log out and log back into tweet chat to get the RT function back. #bcsm
DrAttai
MT @rsm2800 Some are inappropriate b/c they think they "aren't allowed" to use a little humor. But sensitive use of humor helpful #bcsm
Wendy_Nielsen
RT @stales: Okay, tonight we're talking about "The Cancer Conversation" AKA --> People Say the Darnest Things!! #bcsm
Brandie185
Oh, I forgot, some1 told me picture the cancer as a baby & imagine rocking it and singing lullabies to it. It would go away then. #bcsm
JenniferAlhasa
@BCSisterhood For sure! Always good to inform them about what might be better to say (like nothing in many cases!) #BCSM
DrAttai
oh, my RT @stales Another favorite stupid cancer comment: "Do you have unresolved anger issues? I hear that causes cancer?" #bcsm
BCSisterhood
I heard that one not long ago. People just don't think! RT@stales "Do you have unresolved anger issues? I hear that causes cancer?" #BCSM
miamicrime
RT @stales: Another favorite stupid cancer comment: "Do you have unresolved anger issues? I hear that causes cancer?" #bcsm
chemobrainfog
@Pinkribbonwendi I agree! I said that in the beginning. I KNEW it would be like that. PISSED OFF or LAUGHING! #bcsm
ABHuret
Common sense isn't! MT @stales: MT @JediPD: Intelligence doesn't exist in a degree. that's why ignorance speaks through stupid tones #bcsm
Wendy_Nielsen
RT @BCSisterhood: "You'll look back on those as some of life's little bumps." Little? They weren't that little! #BCSM
Brandie185
Oh my fav: "Chemo is just a big money maker. Pay this guy 5000 a month and he'll heal you naturally!" Oh, cause that's cheaper! #bcsm
stales
q1: And more wisdom: "Green smoothies cure cancer", "Pharma has 'the cure' but they're sitting on it just to make more money" #bcsm
JenniferAlhasa
♥ RT @drattai: RT @Brandie185: @JenniferAlhasa I agree. Which is why I usually just smile and nod to people. I think they mean well. #bcsm
chemobrainfog
I love you. Thanks!! RT @stales: @chemobrainfog log out and log back into tweet chat to get the RT function back. #bcsm
Wendy_Nielsen
I got "it's all in God's plan" a lot. And "if Lance Armstrong can do it, so can you." Ugh! #BCSM
yvonnewatterson
Cancer confounds people, I think. But when people know better, they really do better so we need to keep educating families & friends. #bcsm
stales
RT @Pinkribbonwendi: The discussion is 1/2 making me laugh, 1/2 pissing me off! LOL #CancerSucks #ThingsPeopleSayToCancerPatients #bcsm
rsm2800
@chemobrainfog Agree. I had a 19 year old pt (not breast ca) who was more mature than his parents & did most of the comforting #bcsm
chemobrainfog
"You have too much stress in your life" #bcsm
BCSisterhood
It makes me crazy when people call me a cancer "victim." None of this group has a victim mentality, that's for sure. #BCSM
ABHuret
A1 And none of the comments are helpful b/c aside from those w BRCA, no one truly knows what caused it and that's all we want to know! #bcsm
feistybluegecko
anger causes cancer? or cancer causes anger? hmmm i know which resonates more with me!!! #bcsm
Brandie185
RT @Pinkribbonwendi: The discussion is 1/2 making me laugh, 1/2 pissing me off! LOL #CancerSucks #ThingsPeopleSayToCancerPatients #bcsm
JenniferAlhasa
Amen to that! RT @yvonnewatterson: ...when people know better, they really do better so we need to keep educating families & friends. #BCSM
miamicrime
#bcsm A paralegal and a makeup artist said i had to consume a fruit called Guanabana obsessively
DrAttai
RT @BCSisterhood It makes me crazy when people call me a cancer "victim." None of this group has a victim mentality, that's for sure. #bcsm
NancysPoint
RT @yvonnewatterson: Cancer confounds people, I think.when people know better, they do better so we need to keep educating #bcsm
TeamR0XY
Friends often joked about awesome boob job I would gain, which I have yet to get it. I've educated them well since then. #bcsm
talkabouthealth
RT @rsm2800: @chemobrainfog Agree. I had a 19 year old pt (not breast ca) who was more mature than his parents & did most comforting #bcsm
chemobrainfog
"God never gives us more than we can handle. You have strong shoulders" Umm, I have a stronger fist! #bcsm
LynneFavreau
Lady trashes money grubbing pharma then relates her alternative compounds regamine at a cost of $14,000.yr !? I'll stick w/chemo. #bcsm
stales
q1: brilliant piece of work from a social worker: "Now that you're done with treatment, what's next for you? Climbing Everest?" #bcsm
Brandie185
"Just stay positive and it will be fine." Oh, ok. I didn't know positive attitude was a known cure. #bcsm
BCSisterhood
@Wendy_Nielsen I don't believe God micro-manages our lives, although we can use adversity to learn from them. #BCSM
TeamR0XY
@miamicrime No more amazing than you! We are all #strongwomen. #bcsm
Pinkribbonwendi
@stales TY for the hash tag. I keep forgetting! #bcsm
chemobrainfog
Here's another goodie: "Cancer is a gift" #bcsm
JenniferAlhasa
Here's to shining the light! RT @kimwhit: @JenniferAlhasa yes I think it's ignorance, discomfort, fear #bcsm
ABHuret
How about 'It will make you a better person' or 'it's a gift'. I'm sorry ... last I checked, Nordstrom wasn't accepting returns for BC #bcsm
Brandie185
@chemobrainfog If cancer is a gift, I want the receipt so I can return it =) #bcsm
Wendy_Nielsen
@BCSisterhood the worst was that "God gave me cancer on purpose." #BCSM
DrAttai
@stales so did you ever get to Everest?! I would think getting back to life would be more than an accomplishment enough! Jeez. #bcsm
ISophia3
RT @stales: Another favorite stupid cancer comment: "Do you have unresolved anger issues? I hear that causes cancer?" #bcsm
JediPD
Allow me to add one: "They have a cure but they just want to poison us and make money" (Conspiracy Theory #1) #bcsm
NancysPoint
"the most impt thing is to stay positive." that one's hurtful. #bcsm
Brandie185
It's only hair! I have to bite my tongue from saying, oh, well, if it's only hair, shave yours off too =) #bcsm
TeamR0XY
How about this one: If anyone can handle this, it would be you. #bcsm
DrAttai
@Pinkribbonwendi if you log into tweet chat it will add the hashtag automatically #bcsm
kimwhit
can offer a "what not to say" list - so many of them http://t.co/kSTyYNKP #bcsm
chemobrainfog
I agree! RT @Brandie185: @chemobrainfog If cancer is a gift, I want the receipt so I can return it =) #bcsm
rsm2800
@BCSisterhood Re "victim" I was at a press conference once announcing cancer legislation w/ a state governor… #bcsm
Brandie185
@TeamR0XY Right. And it sounds like a compliment, and yet, it's not. #bcsm
ABHuret
@chemobrainfog you are officially freaking me out --- just tweeted the 'gift' comment! lol! XO #bcsm
Pinkribbonwendi
Amen! RT @chemobrainfog: "God never gives us more than we can handle. You have strong shoulders" Umm, I have a stronger fist! #bcsm
jenniegrimes
RT @Brandie185: @chemobrainfog If cancer is a gift, I want the receipt so I can return it =) #bcsm
DrAttai
if it were only that simple RT @NancysPoint "the most impt thing is to stay positive." that one's hurtful. #bcsm
stales
More q1 recaps and wisdom: "Cancer is the gift that keeps on giving" "You need to stay positive" "You're getting a free boob job" #bcsm
dianeradfordmd
Horrible! @Wendy_Nielsen @BCSisterhood the worst was that "God gave me cancer on purpose." #BCSM
chemobrainfog
@ABHuret haha! #bcsm
rsm2800
…who said he was "SO glad he could meet the cancer victims here." This was before he got recalled, ahem #bcsm
ABHuret
@Brandie185 @chemobrainfog Nordstrom isn't accepting returns or I certainly would have exchanged it for a pair of hot stilettos! #BCSM
STrudeauH_MedFT
@BCSisterhood I agree!!! It too bad that we lack a language for the anything other than Victim or Survivor. #BCSM
Pinkribbonwendi
Good one! RT @Brandie185: It's only hair! I have to bite my tongue from saying, oh, well, if it's only hair, shave yours off too =) #bcsm
BCSisterhood
RT@stales "Cancer is the gift that keeps on giving" "You need to stay positive" "You're getting a free boob job" #bcsm #BCSM
chemobrainfog
@stales You are gonna need two hours to recap Q1. #bcsm
stales
@DrAttai honestly! I told SW that all I wanted was a NAP. I wasn't climbing any mountains. I just got done w/ chemo - that was enuf #bcsm
Cancer_Why_Me
@DrAttai @BCSisterhood #bcsm No victim here for darn sure!!! Excellent point! We are the front lines to help others!
BCSisterhood
@rsm2800 Glad to hear he "got" justice for that remark. #BCSM
stales
epic. RT @TeamR0XY: How about this one: If anyone can handle this, it would be you. #bcsm
Brandie185
Snort. My "free" boob job cost so much that I hit max out of pocket medical expenses for my insurance last year. #bcsm
Pinkribbonwendi
RT @chemobrainfog: I agree! RT @Brandie185: @chemobrainfog If cancer is a gift, I want the receipt so I can return it =) #bcsm
yvonnewatterson
I hate cancer; it's not a gift. Another of life's supreme ironies is that were it not for cancer, I wouldn't be in this company. #bcsm #bcsm
DrAttai
@stales naps are good! #bcsm
ABHuret
That whole 'positivity' thing makes my blood boil ... so our loved ones who died weren't positive enough? Don't get me started -- #bcsm
melee_me
RT @chemobrainfog: I agree! RT @Brandie185: @chemobrainfog If cancer is a gift, I want the receipt so I can return it =) #bcsm
SeattleMamaDoc
Great insight & wisdom from women streaming live right now with #bcsm hashtag.
LynneFavreau
I really hated being told what a wonderful role model I was. Poster child for stoisism-NOT. #bcsm
chemobrainfog
YES! RT @Cancer_Why_Me: @DrAttai @BCSisterhood No victim here for darn sure!!! Excellent point! We r the front lines to help others! #bcsm
Brandie185
I also dislike it when people say <so and so> lost his/her battle with cancer. Um. No. They didn't lose. It's not a win/lose thing. #bcsm
stales
@chemobrainfog we might not even get to Q2 tonight! this crew is rolling! #bcsm
rsm2800
And a few rogue Y chromosomes RT @SeattleMamaDoc: Great insight & wisdom from women streaming live right now with #bcsm hashtag.
ABHuret
YES! MT @yvonnewatterson: its not a gift. Another of lifes supreme ironies is that were it not for BC, I wouldnt be in this company #bcsm
stales
@SeattleMamaDoc Thank you! Hope you are doing well :-) #bcsm
DrAttai
we have to get to the comeback lines!! RT @stales: @chemobrainfog we might not even get to Q2 tonight! this crew is rolling! #bcsm
miamicrime
#bcsm I think people first want to figure what I did so that they can avoid it and then they want to believe that there is a magical cure
chemobrainfog
@stales haha! We need to come up with the snappy ANSWERS to the common questions! #bcsm
BCSisterhood
People don't intend to come off as stupid, they're just uneducated & haven't walked the cancer path or aren't thinking. #BCSM
rsm2800
RT @chemobrainfog: @stales haha! We need to come up with the snappy ANSWERS to the common questions! #bcsm
Brandie185
Some beautiful things may come from cancer (i.e. being a part of this amazing group) but I will never say cancer is a gift. Ever. #bcsm
NancysPoint
@Brandie185 I'm posting on that tomorrow...all the battle metaphors. hate em. #bcsm
talkabouthealth
Yes!RT @Brandie185 I also dislike when people say <so and so> lost battle with cancer. No. They didnt lose. Its not a win/lose thing. #bcsm
stales
RT @Brandie185 I also dislike it when people say <so and so> lost his/her battle w/ cancer. Um No. They didnt lose. Its not a win/lose #bcsm
RadioKC
RT @stales: Another favorite stupid cancer comment: "Do you have unresolved anger issues? I hear that causes cancer?" #bcsm
ISophia3
RT @stales: epic. RT @TeamR0XY: How about this one: If anyone can handle this, it would be you. #bcsm
stales
Okay --- Q2: Let’s develop a list of #Snappy Survivor replies!!! #bcsm
ABHuret
@DrAttai The comeback lines that we don't have the audacity to say or the public ones? ; ) #bcsm
chemobrainfog
ugh RT @miamicrime: people want to figure what I did so that they can avoid it and then they want to believe there is a magical cure #bcsm
DrAttai
@DrGhaheri join our chat! the cancer conversation - stuff people say...#bcsm
SeattleMamaDoc
:-) RT @rsm2800: And a few rogue Y chromosomes --Great insight & wisdom from women streaming live right now with #bcsm hashtag.
BCSisterhood
For cruel women w/flat chests you could say, "So when's your breast reconstruction surgery?" @chemobrainfog: @stales #BCSM
DrAttai
we want it all!! RT @ABHuret: @DrAttai The comeback lines that we dont have the audacity to say or the public ones? ; ) #bcsm
stales
q2: When someone says to newly diagnosed person: "My <fill in the blank> had your cancer and died" What do you say?? Make 'em snappy #bcsm
feistybluegecko
the comeback lines are really difficult - these comments stem from so many different things, fear, misinformation, misplaced caring.. #bcsm
rsm2800
& scared it could be them MT @BCSisterhood People don't intend to come off as stupid, just uneducated & haven't walked the cancer path #BCSM
stales
let it RIP! RT @ABHuret: @DrAttai The comeback lines that we dont have the audacity to say or the public ones? ; ) #bcsm
kimwhit
i'm reminded of "sh*t girls say to girls with breast cancer" http://t.co/1aT8DhKo #bcsm
yvonnewatterson
Oh yes, please. I need to carry a list of come-back lines in my purse. Every day. #bcsm
MsGreene
#bcsm @Social*Fly Positivity can't be drummed up. Some of us just knew Breast Cancer wasn't going to win. No judgement for others!
feistybluegecko
so the comeback lines have to gel with where the comments come from, the same words from different mouths mean different things #bcsm
hnh911
@BCSisterhood "God only gives us what we can handle" #BCSM
TeamR0XY
Funniest was while dining out, random woman asked what I had going on w/my hair (um...bald). I say just cancer. Her mouth drops. #bcsm
ABHuret
The 'language' of cancer needs a makeover. Victim, battle, fight, brave, etc. To be honest, I don't exactly like the word 'Survivor'. #bcsm
DrAttai
@SeattleMamaDoc thanks for the shout-out! #bcsm
NancysPoint
agree.RT @feistybluegecko comeback lines are really difficult the comments stem from many different things,misinformation, misplaced #bcsm
Brandie185
Comebacks ... I'd rarely ever give one. Unless I knew the person said something stupid to be an ass purposefully. #bcsm
uvmer
RT @Brandie185 I also dislike when people say <so and so> lost battle with cancer. No. They didnt lose. Its not a win/lose thing. #bcsm
STrudeauH_MedFT
RT@NancysPoint: "the most impt thing is to stay positive." that one's hurtful. #bcsm
Pinkribbonwendi
RT @Pinkribbonwendi: @ABHuret @DrAttai "Quit staring at my bald head or I'll rub up against you and give it to you!" #bcsm
DrAttai
good point MT @feistybluegecko the comeback lines have to gel w/ where the comments come from #bcsm
chemobrainfog
Q2 when someone suggests a miracle cure--"I'll be sure to ask my doctors abt (insert stupid item) at my next visit" #bcsm
stales
@feistybluegecko excellent points. We should consider the context in all cases! #bcsm
DrAttai
MT @TeamR0XY Funniest was dining out, random woman asked what I had going on w/my hair (um..bald). I say just cancer. Her mouth drops. #bcsm
kimwhit
old but useful? http://t.co/RInP2hdh #bcsm
NancysPoint
yes RT @DrAttai: good point MT @feistybluegecko the comeback lines have to gel w/ where the comments come from #bcsm
DrAttai
@TeamR0XY sometimes the blunt truth is the best response #bcsm
LynneFavreau
Who was clear headed enough comeback lines? I just walk away on account of my F*&* You directness. #bcsm
dianeradfordmd
@ABHuret I think in this very forum the word surthrivor was used, which I think is a great word #bcsm
Brandie185
This is my funny bald come-back ;-) http://t.co/cRSdRBRk {That I never actually said & was inspired by awesome twitter friends} #bcsm
TeamR0XY
@BCSisterhood This is why I did my best to educate family & friends. I was open & responded to all questions/comments. #bcsm
stales
@kimwhit hey there! thanks for stopping by. #bcsm
ISophia3
RT @stales: let it RIP! RT @ABHuret: @DrAttai The comeback lines that we dont have the audacity to say or the public ones? ; ) #bcsm
ABHuret
A2 Hero? Brave? No ... I'm not in Afghanistan risking my life to defend our liberties. THOSE men and women are heroes, not me. #bcsm
AdamsLisa
I used to just be angry when ppl gave religious reasons for my cancer. I then started saying "Do you believe that? Because I don't." #bcsm
stales
My worst comeback line right after double mastectomy: Coworker: "What happened to you chest?" Me: "What happened to your face?!" #bcsm
KimTankerous
Seems like unless one refers to #iloveboobies, @KeepABreast won't retweet/address issues vital to breast cancer survivor community #bcsm
NancysPoint
sometimes it's perfectly fine to say that comment was hurtful (or inappropriate or whatever) just like i told my students!! (sorry) #bcsm
Cancer_Why_Me
#bcsm The 1 that gets me is, "I'm sooooo sorry!" All drawn out with emotion. Really?? What are U sorry for? They never know how 2 answer.
DrAttai
@Brandie185 awesome! #bcsm
kimwhit
@stales I am always late - chromosome I believe #bcsm
NancysPoint
@AdamsLisa hi lisa. #bcsm
DrAttai
@stales I assume you two don't talk any more! #bcsm
ABHuret
@dianeradfordmd I think I saw that at one point. I do like that. Survivor makes me sad because it's dismissive of people who die. #bcsm
chemobrainfog
I did a video for @BreastCancerDr http://t.co/8gX7Lfwv #bcsm
miamicrime
#bcsm A2: doctors are not evil. The pharmaceutical companies are not conspiring against me. And no one is hiding the cure for cancer.
SeaSingleVoters
#BCSM Q2 Good resource of what not to say and what to say to someone with breast cancer http://t.co/5uWJ701g via @Caring
kimwhit
RT @NancysPoint: sometimes its perfectly fine to say comment was hurtful (or inappropriate or whatever) #bcsm
Brandie185
#BCSM A2: When people try to give me reasons for my cancer I say "I've learned two things during this. 1. You can do everything right ...
AdamsLisa
Hi to the #bcsm crew! Joining for last portion. Nice to see you.
stales
@DrAttai hee hee. nope, we laugh about it now. it was an educational moment for us both. :-) #bcsm
Brandie185
#bcsm and still get cancer. And 2. You can do everything wrong and not get cancer" Most people get it and then agree.
chemobrainfog
@AdamsLisa Love your blog! #bcsm
JediPD
True on both counts RT @rsm2800: & scared it could be them MT @BCSisterhood People don't intend to come off as stupid, just uneducated #BCSM
stales
@AdamsLisa good evening! I still owe you an email. still on vacation, will get back soon. #bcsm
BCSisterhood
@AdamsLisa Hi Lisa! Great to see you here. #BCSM
ABHuret
@AdamsLisa *waving* Hi Lisa! #bcsm
DrAttai
@AdamsLisa Hi Lisa! We're talking about things people say... and some comeback lines #bcsm
kimwhit
@chemobrainfog AM, this is wonderful, thanks #bcsm
MsGreene
@Social*Fly I'm with you. I don't like "survivor" or "in remission". What terms do you all use to describe yourselves? #bcsm
AdamsLisa
Always frustrating when ppl say, "Oh, I'm sure it's nothing" (before diag confirmed)&"I just know you'll be fine." Neither fact-based #bcsm
chemobrainfog
@kimwhit Thanks :) #bcsm
ABHuret
@MsGreene @abhuret NED is the clinical term, but it doesn't really have meaning outside of this circle #BCSM
DrAttai
@chemobrainfog great advice! #bcsm
mgaile
LOL! RT @stales: My worst comeback line after double mast: Coworker: "What happened to your chest?" Me: "What happened to your face?" #bcsm
BCSisterhood
As in do you have a crystal ball? @AdamsLisa "I just know you'll be fine." #BCSM
AdamsLisa
I always said, "Well, we like to hope that's the case (that things will be okay), but we really don't know, now, do we?" #bcsm
feistybluegecko
yes, the "oh you'll be fine" about monitoring checks really gets me - that is the whole point of the checks!!! i might NOT be fine #bcsm
chemobrainfog
@DrAttai :) thx! #bcsm
jackiefox12
@uvmer @Brandie185 if you havent given up, you haven't lost. New tattoo on friend's daughter's foot the day of Pam's funeral. #bcsm
stales
@mgaile it wasn't one of my better moments! #bcsm
LynneFavreau
6 months out of treatment-I say I had cancer/I was treated for cancer. #bcsm
MsGreene
@AdamsLisa I had a "friend" tell me my cancer was caused by my sin. That was when she thought I was dying. Wonder what she thinks now? #bcsm
Cascadia
RT #BCSM 6 Things Not to Say and to Say to Someone With Breast Cancer - via @caring
miamicrime
#bcsm A2: i respect your religious believes. Please respect mine! (I have never actually said it. I usually just listen and smile).
chemobrainfog
@AdamsLisa Good ANSWER! #bcsm
Dr_Dana
@ABHuret Do you have a preference or good idea for better terms? #bcsm
kimwhit
"I Can't Believe You Just Said That!" http://t.co/6tVjbnTd #bcsm
feistybluegecko
and the "don't worry" advice? Don't worry????? How can you not worry after hearing the blimming cancer words?!? #bcsm
jackiefox12
Just got here but wow this looks AWESOME #bcsm
DrAttai
RT @BCSisterhood As in do you have a crystal ball? @AdamsLisa "I just know you'll be fine." #bcsm
ABHuret
We've all shared 'the fear' here, so it's tough when people comment, "well you're fine now, right?" #dirtylittlesecretofBC #bcsm
heatherwgaona
@AdamsLisa yes to being realistic! You can admit unknown and still be an optimist. #bcsm
BCSisterhood
Is she still your friend? @AdamsLisa I had a "friend" tell me my cancer was caused by my sin. That was when she thought I was dying. #BCSM
talkabouthealth
Yes, amazing chat! RT @jackiefox12: Just got here but wow this looks AWESOME #bcsm
rsm2800
Good answer RT @heatherwgaona: @AdamsLisa yes to being realistic! You can admit unknown and still be an optimist. #bcsm
DrAttai
@jackiefox12 great to see you, Jackie #bcsm
BCSisterhood
@jackiefox12 Waving to you!!! #BCSM
ABHuret
@Dr_Dana I continue to grapple with that ... I use the "S" word as a default, but it truly makes me cringe and I don't like the label #bcsm
stales
okay --- time to wrap up.... With 10 minutes left, share some thoughts on what you wish people WOULD say to those dealing with cancer #bcsm

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