#BCSM transcript

Healthcare Social Media Transcript

From:Mon Aug 27 18:00:00 PDT 2012
To:Mon Aug 27 19:15:00 PDT 2012

What is #BCSM? Who were the influencers during this time period? #BCSM analytics


Healthcare Conference  - Healthcare Tweet Chats  -  Healthcare Analytics

jodyms
We're starting a new series on the emotions of cancer. We'll intersperse these talks between regular chats through the rest of the yr #bcsm
chemobrainfog
Here's the link to tweet chat: easier to follow here http://t.co/Q845kL6W #bcsm
AfternoonNapper
RT @regrounding: Countdown to tweetchat: dealing with anger during #cancer treatment. Tweet volume is about to pump up! #bcsm
CLOUDHealth
@garyleethompson of @ANewCLOUD tweeting on health topics from @CLOUDHealth My wife, Maureen, is breast cancer survivor #Bcsm
DrAttai
Hi Everyone! For those new to the chat we try to minimize the RT's to allow everyone to have their say #bcsm
regrounding
RT @jodyms: Helpful article from @cure_magazine on deal with anger following cancer dx and after: http://t.co/d7Hl7e83 #bcsm
chemobrainfog
@ibeatcancrtwice Hey you. xoxox #bcsm
DrBeckerSchutte
RT @regrounding: Countdown to tweetchat: dealing with anger during #cancer treatment. Tweet volume is about to pump up! #bcsm
jodyms
And while you're all introducing yourselves to each other, and importantly to newbies, I have a few announcements. #bcsm
stales
Hello everyone!! #bcsm
nic_mclean
RT @ibeatcancrtwice: NO ONE pays attention to me EXCEPT #bcsm
chemobrainfog
Somehow I'm thinking this TOPIC is going to amp up the tweets.... #bcsm
rsm2800
My #ASCO12 http://t.co/3n0YLUsf podcast-adv in breast surg, Vit D suppl, & a video abt CPR for pt educ http://t.co/BrxsCurv #bcsm
CLOUDHealth
Since tonight's topic is anger, I am going to tweet from @garyleethompson, since this breast cancer thing is personal. #Bcsm
LGG1
Lisa Greaves, 16-yr bilateral BC survivor. #BCSM
braGGsonline
Good evening everyone. Looking forward to discussing the #anger issue tonight. #bcsm
regrounding
Ya think?? RT @chemobrainfog: Somehow Im thinking this TOPIC is going to amp up the tweets.... #bcsm
jodyms
In October @DrAttai @stales & I are going to meet and plan our next year's activities. We can't wait. We welcome your thoughts & ideas #bcsm
DrAttai
ya think?! RT @chemobrainfog: Somehow Im thinking this TOPIC is going to amp up the tweets.... #bcsm
danceswithpens
hi all, donna peach here, NBCC advoct, blogger, MBC #bcsm
chemobrainfog
RT @CLOUDHealth: Since tonights topic is anger, I am going to tweet from @garyleethompson, since this breast cancer thing is personal. #bcsm
NikiBarrPhD
huge topic! #bcsm
jodyms
And I am a 14-yr survivor of a locally advanced BC. Both of my brothers are also cancer survivors. What can I say: we rock cancer? #bcsm
chemobrainfog
@danceswithpens Donna.. Hi! #bcsm
DrAttai
@regrounding @chemobrainfog we had the same thought... #bcsm
stales
Good evening everyone! #bcsm
rsm2800
Dr. Bob Miller, medical oncologist from Johns Hopkins specializing in breast cancer & biomedical informatics #bcsm
chemobrainfog
@regrounding Hey, Lori... xoxox #bcsm
stales
WOOHOO! RT @jodyms: In October @DrAttai @stales & I are going to meet and plan our next years activities. We cant wait. #bcsm
crgonzalez
Howdy! I'm Carmen Gonzalez, clinical study patient enrollment strategist, Downton Abbey TV series fan, and booster of #bcsm
DrAttai
MT @jodyms: In October @DrAttai @stales & I are going to meet and plan next years activities. We welcome your thoughts & ideas #bcsm
regrounding
Great minds! RT @DrAttai: @regrounding @chemobrainfog we had the same thought... #bcsm
jodyms
I agree with @DrAttai. Hit the pause key before you automatically RT. That gives us more time to respond and ask questions. #bcsm
danceswithpens
@chemobrainfog hey AnneMarie #bcsm
CJMeta
Checking in ... haven't made it in awhile. #bcsm
regrounding
Hi you!! Fingers well rested?? XOXOX RT @chemobrainfog: @regrounding Hey, Lori... xoxox #bcsm
DrBeckerSchutte
Hi all, I'm Ann, a psychologist from the Kansas City area-I specialize in working with folks affected by serious illness. #bcsm
NikiBarrPhD
Niki Barr psychotherapist and author #bcsm
Bethlgainer
@chemobrainfog Hi you! #BCSM
chemobrainfog
me 2 RT @jodyms: I am a 14-yr survivor of a locally advanced BC. Both brothers are cancer survivors. What can I say: we rock cancer? #bcsm
garyleethompson
My wife, Maureen, was diagnosed in 2003, while 3 months pregnant with our now 8 year old daughter. Talk about ticked off... #Bcsm
DrAttai
@rsm2800 welcome - we're talking anger tonight - glad you could join us again #bcsm
stales
I'm Alicia 3x, 20+ yr cancer survivor (hodgkin's then BC). Honored to moderate with @jodyms and @drAttai #bcsm
chemobrainfog
AHHHHHHH.... CJ ... xoxox RT @CJMeta: Checking in ... havent made it in awhile. #bcsm
jodyms
There's a lot to cover tonight. Anger IS personal, and how it is expressed varies enormously. There is no right or wrong. #bcsm
DrAttai
glad you made it, Niki! RT @NikiBarrPhD: Niki Barr psychotherapist and author #bcsm
stales
@DrBeckerSchutte Hello Kansas City!!! #bcsm
Brandie185
Evening all. Brandie from Chicago here. #bcsm
crgonzalez
@regrounding Hola, Lori! #bcsm
DrAttai
Deanna Attai, breast surgeon from LA #bcsm
regrounding
Hi everyone! I'm Lori. Cancer coach, blogger and 10-year survivor, now with mets. #bcsm
JediPD
Monday nights at the #bcsm Good evening all.
jodyms
I found the article from @Cure_Magazine very helpful; as well as the info from Vanderbilt. #bcsm
regrounding
Hi! How's the pink holding up??? RT @crgonzalez: @regrounding Hola, Lori! #bcsm
chemobrainfog
I'm AnneMarie .... was ready to have a brawl w/oncologist today over something that happened with mom. Timely topic for me! #bcsm
NikiBarrPhD
@DrAttai So glad to be here! #bcsm
DrAttai
Fantastic turnout tonight #bcsm
stales
Hi CJ!! @CJMeta: Checking in ... havent made it in awhile. #bcsm
feistybluegecko
Hi everyone from Tuesday, I'm philippa, based in Myanmar, stage 3 diagnosed oct 2009 and likely to lurk today as am off to work soon.. #bcsm
AdamsLisa
You will see some cancer-related tweets as I join the #bcsm chat for the next hour. (breast cancer social media).
jodyms
Oh @cjmeta - it is terrific to have you here w/us tonight. Is it OK to say you're tweeting from an alternate location? #bcsm
sassyshae
@sassyshae hi, y'all (yes, I'm in Houston) #bcsm
DrBeckerSchutte
We haven't even hit the topic yet and the tweets are flying. #bcsm
FollowHeidi
#bcsm I started early- wrong time zone! :)
regrounding
Welcoming my awesome husband John @jrubiner to join this evening...we'll see how this goes! #bcsm
danceswithpens
@regrounding Hi Lori, nice to see u tonight #bcsm
regrounding
@cjmeta - OMGOSH...so great to see you!! #bcsm
crgonzalez
@regrounding Dude, my roots are already showing. My hair grows too fast! #bcsm
jodyms
@AdamsLisa @feistybluegecko welcome:) #bcsm
chemobrainfog
"Anger Mgt 101" RT @regrounding: Welcoming my awesome husband John @jrubiner to join this evening...well see how this goes! #bcsm
annwax
Hi to everyone. #bcsm
a4breastcancer
Join me for a #bcsm TweetChat at: http://t.co/OAq1tbIZ #bcsm
CJMeta
@jodyms Absolutely! #bcsm
DrAttai
@FollowHeidi better too early than too late - glad you made it! #bcsm
jodyms
@regrounding @jrubiner I think that's fabulous. Welcome, John. #bcsm
garyleethompson
Welcome John! Another hubby! RT @regrounding: Welcoming my awesome husband John @jrubiner to join this evening. well see how this goes #Bcsm
jodyms
I'll put the first question out on the next tweet because I know you have a lot to say. #bcsm
chemobrainfog
NBCC reunion. I just uploaded the pics! RT @regrounding: @cjmeta - OMGOSH...so great to see you!! #bcsm
Jrubiner
Hi everyone, I'm Lori's husband. My first tweetchat. #bcsm
a4breastcancer
Hi I am Susan Zaher Patie3nt advocate owner non-profit for advocacy LEAD Grad Blogger #BCSM
DrBeckerSchutte
I'm not even going to try to greet individually--hello all you amazing people!! #bcsm
HeartOverdBars
#bcsm Hi everyone! Amy here. Diagnosed at Stage IV in 2011. It's been a long strange trip, and I'm glad to be alive and feeling good.
DrBeckerSchutte
@stales Hi there! #bcsm
jorunkjones
Greetings to a special caring wonderful group of people. Caregiver and helper at @talkabouthealth #bcsm
jodyms
Q1: When and how did anger manifest itself in your cancer treatment and survivorship? Serial tweets are fine. We're listening. #bcsm
regrounding
@danceswithpens Hi Donna...how are? RT @danceswithpens: @regrounding Hi Lori, nice to see u tonight #bcsm
Bethlgainer
@Jrubiner Welcome! #BCSM
FollowHeidi
RT @HealthInfo411: RT @FollowHeidi #bcsm I only had anger when my mom died from breast cancer, but not when I had it myself.
DrAttai
@regrounding good work dragging @jrubiner along! #bcsm
chemobrainfog
@Jrubiner ****waving***** #bcsm
regrounding
And I don't have copies why?? RT @chemobrainfog: NBCC reunion. I just uploaded the pics! RT @regrounding: @cjmeta #bcsm
CJMeta
Welcome John! #bcsm
jodyms
@HeartOverdBars How awesome to have you here:) Thanks for joining us. #bcsm
chemobrainfog
Big ditto! RT @DrBeckerSchutte: Im not even going to try to greet individually--hello all you amazing people!! #bcsm
DrAttai
welcome!! RT @Jrubiner: Hi everyone, Im Loris husband. My first tweetchat. #bcsm
jodyms
RT @DrBeckerSchutte: Im not even going to try to greet individually--hello all you amazing people!! #bcsm
DrBeckerSchutte
RT @jodyms: When and how did anger manifest itself in your cancer treatment and survivorship? Serial tweets are fine. Were listening. #bcsm
regrounding
AWWW...so what color is next? RT @crgonzalez: @regrounding Dude, my roots are already showing. My hair grows too fast! #bcsm
chemobrainfog
@regrounding Will send them later! #bcsm
DrAttai
MT @jodyms: Q1: When & how did anger manifest itself in your cancer treatment & survivorship? Serial tweets are fine. Were listening. #bcsm
a4breastcancer
Many different times in different ways. still have issues with it #BCSM #bcsm
Bethlgainer
Q1: wasn't angry as a patient, but sure am as a survivor. Lots of things docs didn't tell me b/4 tmt and i had gr8 docs. #BCSM
annwax
@jodyms From seeing anger re illness from my pts. it is hard for them to heal from within. #bcsm
stales
RT @jodyms Q1: When/how did anger manifest itself in your cancer treatment and survivorship? Serial tweets are fine. Were listening. #bcsm
jodyms
@a4breastcancer What was the first thing you noticed? #bcsm
LGG1
Lots of latent anger. #BCSM
stales
RT @Bethlgainer: Q1: wasnt angry as a patient, but sure am as a survivor. Lots of things docs didnt tell me b/4 tmt and i had gr8 docs #bcsm
DrAttai
can you give specifics? RT @a4breastcancer: Many different times in different ways. still have issues with it #BCSM #bcsm
regrounding
RT @DrAttai: MT @jodyms: Q1: When & how did anger manifest in ur cancer treatment & survivorship? Serial tweets OK. Were listening. #bcsm
DrBeckerSchutte
RT @Bethlgainer: Q1: wasnt angry as a patient, but sure am as a survivor. Lots of things docs didnt tell me b/4 tmt and i had gr8 docs #bcsm
stales
RT @LGG1: Lots of latent anger. #bcsm
jodyms
RT @Bethlgainer: Q1: wasnt angry as a patient, but sure am as a survivor.Lots of things docs didnt tell me b/4 tmt and i had gr8 docs. #bcsm
DrAttai
at diagnosis itself? treatment? effects of treatment? RT @LGG1: Lots of latent anger. #bcsm
DrBeckerSchutte
RT @a4breastcancer: Many different times in different ways. still have issues with it #BCSM #bcsm
sassyshae
@sassyshae I wasn't angry until after treatment and there was no plan to move forward. #bcsm
stales
@Jrubiner Hi there! Thanks for stopping by tonight. Honored to have you join us! #bcsm
chemobrainfog
Q1 I'm trying 2 remember when anger kicked in. Shock, sadness, disbelief for a long time before anger entered the emotional minefield #bcsm
HeartOverdBars
Honestly haven't been angry much. I think I have great docs and great support. I get mad about pink ribbon denial & erasing stage IV #bcsm
regrounding
Q1: I honestly don't remember a lot of anger. What I had was directed at how this impacted my family, mostly my son. #bcsm
stales
RT @sassyshae: I wasnt angry until after treatment and there was no plan to move forward. #bcsm
a4breastcancer
@DrAttai funny you showed article Vanderbilt=Ingram-I volunteered and very angry with plastic surgeon there #BCSM #bcsm
CJMeta
Wasn't angry at BC or MBC ... was angry at the different public response to MBC vis-a-vis BC #bcsm
Bethlgainer
@sassyshae No plan from the medical staff? #BCSM
LGG1
@DrAttai I think long-term effects of treatment, even if known, r hard to deal with down the road. #BCSM
jodyms
Q1: During treatment we're so busy w/getting through it effects are often delayed....a boomerang reaction. #bcsm
Brandie185
Q1 Hmm, I know I have anger. There are days where I am bursting with it, but then I stuff it. And I am afraid one day I will just blow #bcsm
garyleethompson
Maureen spent 10 years pursuing architecture degree, internship and license. Day license arrived was same day her biopsy came back... #Bcsm
annwax
@HeartOverdBars I cannot stand the pink ribbons. #bcsm
regrounding
YES!!! RT @CJMeta: Wasnt angry at BC or MBC ... was angry at the different public response to MBC vis-a-vis BC #bcsm
HeartOverdBars
RT @CJMeta: Wasnt angry at BC or MBC ... was angry at the different public response to MBC vis-a-vis BC Yes, yes! #bcsm
chemobrainfog
Yes! RT @HeartOverdBars: havent been angry much. I think I have great docs & support. mad about pink ribbon denial & erasing stage IV #bcsm
jodyms
@CJMeta Q1: I'm seeing that a lot - anger at public response or lack of. #bcsm
danceswithpens
Q1 Was angry at 1st after failure to dx me w stage IV/mets b/c I kept askg PCP, could it be my BC. Had months of agony and damage. #bcsm
Bethlgainer
YES! RT @jodyms: Q1: During treatment were so busy w/getting through it effects are often delayed....a boomerang reaction. #BCSM
a4breastcancer
he told me to wait for the FDA to approve an implant they never approved, botched job, would never finish #BCSM #bcsm
colleen_young
Interesting. @HeartOverdBars RT @CJMeta: Wasn't angry at BC or MBC ... was angry at the different public response to MBC vis-a-vis BC #bcsm
DrAttai
@HeartOverdBars glad your experience was "good" - we're all angry about pink crap and lack of focus on metastatic disease #bcsm
Brandie185
But I also think the anger hit after treatment. When I was finally not sick enough to actually have room for feelings. #bcsm
chemobrainfog
Oh yes!!! RT @CJMeta: Wasnt angry at BC or MBC ... was angry at the different public response to MBC vis-a-vis BC #bcsm
stales
RT @jodyms: @CJMeta Q1: I'm seeing that a lot - anger at public response or lack of. #bcsm
DrBeckerSchutte
MT @chemobrainfog: Trying 2 remember when anger kicked in-Shock, sadness, disbelief long time before anger entered emotional minefield #bcsm
stales
RT @Brandie185: But I also think the anger hit after treatment. When I was finally not sick enough to actually have room for feelings. #bcsm
HeartOverdBars
@annwax Me neither. The whole culture of cheerfulness. Brightsiding. "You have a great attitude." Magical thinking. #bcsm
DrAttai
@a4breastcancer definitely not a good situation #bcsm
colleen_young
@regrounding @HeartOverdBars @CJMeta Angry at response or lack thereof? #bcsm
jodyms
RT @colleen_young: Interesting. @HeartOverdBars RT @CJMeta: Wasnt angry at BC or MBC ... was angry at the dif public response to MBC #bcsm
regrounding
On second thought...there was some anger that my ob/gyn failed to notice a 4cm tumor. #bcsm
Bethlgainer
@danceswithpens Wow. Totally justified anger. #BCSM
sassyshae
@sassyshae I am encouraged though, seeing my oncologist's protege, she has a good plan, also have bariatric surgery consult soon. #bcsm
a4breastcancer
angry that my friend died of MBC and that in the past 14 minutes some woman in the US died of MBC #BCSM #bcsm
talkabouthealth
Hi everyone, Murray here. Lurking tonight but just wanted to say hello :) Great topic! #bcsm
Jrubiner
When Lori started treatment, I was angry that it was now part of our lives...starting our son in pre-school seemed like enough #bcsm
DrAttai
@Brandie185 let it out - you need an escape valve! #bcsm
stales
T1: I was very angry when first diagnosed with hodgkins at such a young age. Angry that my college years were chemo years :-( #bcsm
DrBeckerSchutte
RT @jodyms: Q1: During treatment were so busy w/getting through it effects are often delayed....a boomerang reaction. #bcsm
garyleethompson
Instead of celebrating her status as architect, we instead were faced with "you have cancer." Her tears stirred a deep anger.... #Bcsm
stales
whoa... RT @regrounding: On second thought...there was some anger that my ob/gyn failed to notice a 4cm tumor. #bcsm
HeartOverdBars
@DrAttai People just don't hear about Stage IV. It's all brave talk about "great prognosis." So many people living w/terminal dx #bcsm
jodyms
Q1: I remember being crazy furious when I was taking tamoxifen. It was impossible to even sit still and work. So uncomfortable. #bcsm
crgonzalez
@HeartOverdBars Culture of cheerfulness = condescending attitude #bcsm
braGGsonline
Q1 Was angry that BC took my mother from me as a small child & now could take me as a mother to my own small children Very complicated #bcsm
regrounding
Angry about the pink ribbon culture. RT @colleen_young: @regrounding @HeartOverdBars @CJMeta Angry at response or lack thereof? #bcsm
DrAttai
RT @Brandie185: But I also think the anger hit after treatment. When I was finally not sick enough to actually have room for feelings. #bcsm
danceswithpens
Q1 was never angry after primary, only after delayed dx of stage IV and devastating results. #bcsm
DrBeckerSchutte
RT @regrounding: On second thought...there was some anger that my ob/gyn failed to notice a 4cm tumor. #bcsm
chemobrainfog
Q1 I think I began to get angry when the first people started to tell me about my "boob job" #bcsm
sassyshae
@Bethlgainer Lose weight. That was the plan. #bcsm
Bethlgainer
MT @Jrubiner: When Lori started trmnt, I was angry that it was now part of our lives...starting son in pre-school seemed like enough #BCSM
Brandie185
Yes, I agree, angry about how breast cancer is often portrayed as an excuse to throw a party with a lot of pink. Blech. #bcsm
jodyms
@danceswithpens A delayed dx? Understandably angry. #bcsm
jodyms
@chemobrainfog people asked you about "boob job?" #bcsm
danceswithpens
@a4breastcancer I often get angry with cancer after posting names of MBC friends who have died on a list i keep on my blog. #bcsm
chemobrainfog
Q1 and then, the minute the chemo needle was out of my arm for the last time, "Cancer is over" Yup, that pissed me off, too #bcsm
stales
RT @Brandie185 Q1 know I have anger. There are days where I am bursting with it, but then stuff it. am afraid one day I will just blow #bcsm
colleen_young
@regrounding Oh yes. But is that related to the BC vs. MBC public response? Excuse my ignorance. #bcsm
stales
RT @Brandie185: Yes, I agree, angry about how breast cancer is often portrayed as an excuse to throw a party with a lot of pink. Blech #bcsm
DrAttai
@Jrubiner son starting preschool is more than enough! #bcsm
jodyms
Q1: Did any of your perceive your feelings of anger as something negative or something to avoid? #bcsm
HeartOverdBars
@Brandie185 Blech indeed. I'm angry at the cancer-industrial complex. #bcsm
DrBeckerSchutte
Everyone needs an escape valve-suppressed anger is bad for you! RT @DrAttai: @Brandie185 let it out - you need an escape valve! #bcsm
annwax
It is very upsetting when you go to a healthcare professional and the miss dx you. That can get a person angry. #bcsm
chemobrainfog
@jodyms Yes.. the bilat mx w/reconstruction was "nothing more than a boob job" #bcsm
danceswithpens
@jodyms Took me a while to deal with that … #bcsm
a4breastcancer
angry in past 14 minutes someone in US died of MBC #BCSM #bcsm
Jrubiner
During @regrounding's treatment I was angry at the pity...in hospital, she had an older roommate and her kids seemed so sad for us #bcsm
Bethlgainer
Q1: During tmt was angry at ppl who said I "looked good" and was lucky to get vacay to get chemo. #BCSM
ABHuret
Tardy to the party --- sorry. Hi All : ) #bcsm
DrAttai
RT @HeartOverdBars: @Brandie185 Blech indeed. Im angry at the cancer-industrial complex. #bcsm
Brandie185
grrr ... is twitter lagging for everyone else too? Or just me? #bcsm
JulieGoodale
Hi, late to the game tonight & cooking dinner. Anger? Got angry at movies w/ chick dying - she always looks good & grateful. #bcsm
DrAttai
RT @jodyms: Q1: Did any of your perceive your feelings of anger as something negative or something to avoid? #bcsm
crgonzalez
RT @HeartOverdBars: @Brandie185 Blech indeed. Im angry at the cancer-industrial complex. #bcsm
jodyms
@DrBeckerSchutte Suppressed anger. What happens w/that? I know the sterotypes...but what's the reality? #bcsm
sassyshae
@sassyshae I felt like the feelings would keep me from moving forward. #bcsm
LGG1
Yes! RT @annwax: It is very upsetting when you go to a healthcare professional and the miss dx you. That can get a person angry. #BCSM
DrBeckerSchutte
MT @chemobrainfog Then, the minute the chemo needle was out of my arm for the last time, "Cancer is over" Yup, that pissed me off, too #bcsm
regrounding
For me, yes. Public has been fed a bill of goods - try hard enough & BC is now curable, ergo MBC is my fault. RT @colleen_young #bcsm
HeartOverdBars
@crgonzalez Yup. Not really condescending though. Whistling in a graveyard? Ppl want to think they have control. #bcsm
Bethlgainer
@chemobrainfog Horrible how many ppl say that. #BCSM
NikiBarrPhD
@Bethlgainer Unbelievable! #bcsm
chemobrainfog
Q1 in the beginning, I avoided my anger. Let the remarks go. Now. Not So Much! #bcsm
DrAttai
@ABHuret hi - we're talking about cancer anger #bcsm
chemobrainfog
Hi Ab! RT @ABHuret: Tardy to the party --- sorry. Hi All : ) #bcsm
annwax
@Bethlgainer The remarks that people say are unbeleivable. #bcsm
HeartOverdBars
@DrAttai Good question. Not me. I've had a lot of therapy LOL #bcsm
jodyms
@danceswithpens Absolutely! #bcsm
sassyshae
@sassyshae I'd read so many inspiring stories by survivors that I felt like I wasn't truly victorious if I was angry. #bcsm
JulieGoodale
@Bethlgainer No, lucky for vacay for chemo? Stupid sh**s! #bcsm
BCSMComm
RT @chemobrainfog: Q1 in the beginning, I avoided my anger. Let the remarks go. Now. Not So Much! #bcsm
Brandie185
@DrBeckerSchutte @DrAttai I know. But I don't know how to. Is that strange? Last year I shot a gun for the first time tho ;-) #bcsm
Bethlgainer
Q1: One co-worker was preggers while I was on chemo, and she had nerve to compare our illnesses as similar. #BCSM
danceswithpens
aside from the world's misunderstandings about this, I find anger toward cancer itself a regular experience for me (with MBC) #bcsm
ABHuret
A1 Yes; to a certain extent, I felt the 'positivity' message was crammed down my throat. #bcsm
colleen_young
@regrounding Thank you for explaining. I get that anger! #bcsm
DrAttai
@Brandie185 we might be overloading the system just a little bit... #bcsm
a4breastcancer
Because I have no control of all of these cancer deaths I use my anger with my cancer work in trying to help others - #BCSM #bcsm
DrAttai
RT @Bethlgainer: Q1: One co-worker was preggers while I was on chemo, and she had nerve to compare our illnesses as similar. #bcsm
jodyms
@regrounding No one in BC community views metastatic disease as the fault of the person. EVER. Lay that squarely on the cancer. #bcsm
Bethlgainer
@JulieGoodale Yeah. Lucky me. #BCSM
chemobrainfog
Wow Wow! +1 RT @sassyshae: Id read so many inspiring stories by survivors that I felt like I wasnt truly victorious if I was angry. #bcsm
MarilynRDecker
#BCSM chat tonight ..ok let me show my face tonight :) Great Topic....Anger? No not me ;)
jodyms
RT @danceswithpens: aside from the worlds misunderstandings. I find anger toward cancer itself a regular experience for me (with MBC) #bcsm
DrBeckerSchutte
@jodyms Suppressed anger can bubble up in lots of ways-relationship strain, emotional overwhelm, and physical strain. #bcsm
regrounding
@colleen_young Just MY take...can't speak for the others!! #bcsm
DrAttai
@sassyshae you get to do this however YOU want - whatever works for YOU. Anger is not for everyone #bcsm
annwax
@regrounding @colleen_young The system making you a victim re your disease process can also make a person angry. #bcsm
thecancercardX
RT @jodyms: Add'l info on dealing w/ anger during cancer treatment via Vanderbilt-Ingram Cancer Center: http://t.co/ZkYjaEH7 #bcsm cc: @stales @drattai
DrBeckerSchutte
@jodyms The way it looks is going to depend on the individual. #bcsm
chemobrainfog
Ugh, yes. RT @ABHuret: A1 Yes; to a certain extent, I felt the positivity message was crammed down my throat. #bcsm
ABHuret
A1 Given all else going on, also 'compartementalized' & didn't deal w it directly. Too many other moving parts (insur, unempl, etc) #bcsm
crgonzalez
@ABHuret That can be draining emotionally. Expectations not grounded in reality and causing personal pressure. #bcsm
regrounding
AGREED, but outside, not so much! MT @jodyms: @regrounding No one in BC comm views metastatic disease as fault of the person. EVER. #bcsm
DrAttai
MT @jodyms @regrounding No one in BC community views metastatic disease as the fault of the person. EVER. #bcsm
Jrubiner
@jodyms Good point, but the outside world has been given pink Koolaide and a happy, survivor face #bcsm
danceswithpens
@a4breastcancer I find channels for coping with the cancer (hi Susan :) ) and sounds like u do2. It helps me a lot. Focusing on others #bcsm
CJMeta
Misleading statements. Giving false security. Implying it's the obese who progress. I've only met one obese person with MBC. #bcsm
DrBeckerSchutte
@Brandie185 It's not strange. Many people don't know what to do with anger. That's why there is a part 2 to the post I wrote today. #bcsm
jodyms
RT @DrBeckerSchutte: @jodyms Suppressed anger can bubble uplots of ways-relationship strain, emotional overwhelm & physical strain. #bcsm
a4breastcancer
Absolutey MBC is not the persons fault. All breast cancer should not be thought of as putting ourselves at fault #BCSM #bcsm
crgonzalez
@Bethlgainer What! Pregnancy and cancer? She's nuts. Hard to reason with the crazies. #bcsm
DrAttai
@MarilynRDecker feel free to join in - all are welcome! #bcsm
Brandie185
I also get angry when you complain about side effect/etc and someone says flippantly "Well, it beats the alternative." Grrr. #bcsm
chemobrainfog
I love the fact that the Cure mag article CLEARLY says, "no link between positive thinking and better outcomes" Yay 4 great docs! #bcsm
jodyms
@regrounding We have to keep working on that. I think world is getting a deeper pic thanks to women like you. #bcsm
garyleethompson
@DrAttai Tell me about it! Maureen was pregnant, then mastectomy, then chemo, childbirth week after chemo end & radiation 1 week l8r #Bcsm
ABHuret
Yes! It resurfaces! MT @DrBeckerSchutte: @jodyms Suppressed anger can bubble up in lots of ways - relationship, emotional, physical. #bcsm
DrAttai
RT @DrBeckerSchutte @jodyms Suppressed anger can bubble up in lots of ways-relationship strain, emotional overwhelm & physical strain. #bcsm
FollowHeidi
#bcsm my anger is directed at how cancer patients are treated in some arenas: thankful for people fighting for our rights
JulieGoodale
I never felt really angry about my cancer (it was there, get on with it...). But still feel intense anger over others' cancers/deaths. #bcsm
Bethlgainer
@crgonzalez Yes, it was a crazy time. #BCSM
DrAttai
best to walk away! RT @crgonzalez: @Bethlgainer What! Pregnancy and cancer? Shes nuts. Hard to reason with the crazies. #bcsm
annwax
@DrAttai @DrBeckerSchutte @jodyms It is not healthy to suppress anger. #bcsm
Brandie185
I get angry when people spout off incorrect facts about breast cancer too. Not at them tho, at the failure of "awareness" campaigns #bcsm
stales
RT @FollowHeidi: my anger is directed at how cancer patients are treated in some arenas: thankful for people fighting for our rights #bcsm
regrounding
@chemobrainfog love the fact that the Cure mag article CLEARLY: "no link between positive thinking & better outcomes" Yay 4 great docs #bcsm
CJMeta
People are more comfortable blaming the MBC patients for their disease. Makes them feel safe. #bcsm
FollowHeidi
RT @ABHuret: A1 Yes; to a certain extent, I felt the 'positivity' message was crammed down my throat. #bcsm
MarilynRDecker
#BCSM Angry when I wasn't a cancer survivor because "I only had Diep Surgery and not chemo"
a4breastcancer
@danceswithpens Yes Hi Donna! #BCSM #bcsm
HeartOverdBars
@JulieGoodale I agree. I accept my own misfortune. Pissed off about injustice and sad/mad to lose friends. #bcsm
regrounding
All of us!! RT @jodyms: @regrounding We have to keep working on that. I think world is getting a deeper pic thanks to women like you. #bcsm
Bethlgainer
@DrAttai She was my supervisor. Couldn't walk away so fast. #BCSM
jodyms
Q1: In our house we call it "sideways" anger. We go for MD Anderson appt then next day one of us is YELLING about the dishwasher. #bcsm
NikiBarrPhD
RT @CJMeta: People are more comfortable blaming the MBC patients for their disease. Makes them feel safe. #bcsm
ABHuret
BOOM! MT @chemobrainfog Love fact Cure mag article CLEARLY says, "no link betw positive thinking & better outcomes" Yay 4 great docs! #bcsm
DrAttai
RT @FollowHeidi: RT @ABHuret: A1 Yes; to a certain extent, I felt the positivity message was crammed down my throat. #bcsm
AfternoonNapper
@chemobrainfog Sorry to poke in but - can you define diff b/w positivity and practicality/realism? Issue crosses diseases. #bcsm
danceswithpens
anger plays a role 2 sometimes when it requires changes in life that we resist--i'm a workaholic--it KILLED me to have to disab retire #bcsm
colleen_young
@annwax @HeartOverdBars Thanks #bcsm.
JulieGoodale
RT @FollowHeidi #bcsm my anger is directed at how cancer patients are treated in some arenas: thankful for ppl fighting for our rights #bcsm
Bethlgainer
@MarilynRDecker Wow. The DIEP flap is brutal. #BCSM
HeartOverdBars
@jodyms Good one! "Sidways" anger. #bcsm
jodyms
@HeartOverdBars @juliegoodale the grief at losing friends, at really young ages, is crushong. That hurts. #bcsm
stales
RT @JulieGoodale I never felt really angry abt my cancer (it was there get on with it) But still feel anger over others cancers/deaths #bcsm
DrAttai
@Bethlgainer wow - an incredibly insensitive supervisor - makes a tough situation almost impossible #bcsm
regrounding
RT @CJMeta: People are more comfortable blaming the MBC patients for their disease. Makes them feel safe. #bcsm
CJMeta
Angry when people say to someone w MBC. Well ... I could walk across the street tomorrow and get killed! #bcsm
FollowHeidi
#bcsm and anger at those who use bc as a platform for a career or political gain without any compassion for actual patients. Grrrrr
sassyshae
@sassyshae Let's just say I got angry enough to take control of my moving forward. Put the anger to good use! #bcsm
double_whammied
RT @FollowHeidi: #bcsm my anger is directed at how cancer patients are treated in some arenas: thankful for people fighting for our rights
ABHuret
A1 Anger also every time someone who was newly diagnosed was late 20s & 'dismissed' by doctors. Youngest had just graduated college #bcsm
chemobrainfog
@jodyms HaHa.. the dishwasher. I just did the misplaced anger thing. Worried abt mom ALOT, took it out on poor daughter. #bcsm
stales
good point! RT @AfternoonNapper Sorry to poke in but can you define diff b/w positivity & practicality/realism? Issue crosses diseases #bcsm
jodyms
Q1: Always curious - did you oncologist ever ask you how you were handling treatment emotionally? Or did that just come out? #bcsm
LGG1
Brutal pain. RT @jodyms: @HeartOverdBars @juliegoodale the grief at losing friends, at really young ages, is crushong. That hurts. #BCSM
stales
RT @CJMeta: Angry when people say to someone w MBC. Well ... I could walk across the street tomorrow and get killed! #bcsm
HeartOverdBars
@regrounding Absolutely. And sometimes we blame ourselves. Ppl have a compulsion to make meaning, make sense of the world #bcsm
Jrubiner
RT @CJMeta: Angry when people say to someone w MBC. Well ... I could walk across the street tomorrow and get killed! #bcsm
double_whammied
RT @CJMeta: People are more comfortable blaming the MBC patients for their disease. Makes them feel safe. #bcsm
regrounding
I guess I get angry...frustrated...when I other talk about how much PROGRESS we've made. Oh, and a little angry at #Komen - lol #bcsm
DrBeckerSchutte
Sure does! RT @ABHuret: Yes! It resurfaces! MT Suppressed anger can bubble up in lots of ways - relationship, emotional, physical. #bcsm
crgonzalez
@CJMeta That comment makes me think there ought to be a law that grants a patient the right to fire off a loaded pistol #bcsm
jodyms
RT @FollowHeidi: ..anger at those who use bc as a platform for a career or political gain w/o compassion for actual patients. Grrrrr #bcsm
chemobrainfog
When people say the "hit by a bus thing" ... reply: "You are on the SIDEWALK, I'm standing in bus lane during rush hour. GOT IT??" #bcsm
feistybluegecko
Q1 I have been more taken over by anxiety, frustration and sadness. Now I get cross with cancer when friends, new people diagnosed :( #bcsm
ABHuret
The anger has grown the more I have learned about what is NOT being done. Focus on 'awareness' rather than 'prevention' and 'cure' #bcsm
DrAttai
RT @jodyms Q1 Always curious -did you oncologist ever ask you how you were handling treatment emotionally? Or did that just come out? #bcsm
garyleethompson
+1 MT @FollowHeidi: Anger at those who use bc as a platform for career or political gain w/out compassion for actual patients. #Bcsm
HeartOverdBars
@Jrubiner Oh, yes. Ignores the facts about who's more likely to die, and of what. #bcsm
Bethlgainer
Q1: My onc was very good w me emotionally. Held my hand and told me he knew this was difficult. Helped. #BCSM
jodyms
@Jrubiner @cjmeta - that's lousy. Tell them, yes, maybe a building will topple over on you, too. #bcsm
stales
yes!! RT @DrAttai: @sassyshae you get to do this however YOU want - whatever works for YOU. Anger is not for everyone #bcsm
jorunkjones
MT Agree RT @sassyshae: Lets just say I got angry enough to take control of my moving forward. Put the anger to good use! #bcsm
jodyms
@crgonzalez LOL. #bcsm
danceswithpens
@jodyms Not in so many words, but we have a rare connection that transcends a lot of conversation somehow. She knows when I'm freakin #bcsm
stales
RT @ABHuret: The anger has grown the more I have learned about what is NOT being done. Focus on awareness rather than prevention/cure #bcsm
feistybluegecko
and when so so many are diagnosed and live with mets, or are taken by mets. I hate, hate cancer #bcsm
Brandie185
I have to go now. Peace and love friends #bcsm
sassyshae
@chemobrainfog That's right! #bcsm
jodyms
@regrounding it's hard to separate what truly IS progress from BS promotion? #bcsm
stales
RT @jodyms: Q1: Always curious did you oncologist ever ask you how you were handling treatment emotionally? Or did that just come out #bcsm
DrBeckerSchutte
MT @regrounding: I guess I get angry-frustrated-when I other talk about how much PROGRESS weve made. Oh, and a little angry at #Komen #bcsm
HeartOverdBars
@chemobrainfog Good one! #bcsm
AdamsLisa
my oncologist always asked me during chemo how I was. When I said, "fine" he always countered… "No… really… how ARE you?" #bcsm
stales
Me too :-( RT @feistybluegecko: and when so so many are diagnosed and live with mets, or are taken by mets. I hate, hate cancer #bcsm
DrBeckerSchutte
Have a good night!RT @Brandie185: I have to go now. Peace and love friends #bcsm
chemobrainfog
@Brandie185 ((HUGS)) #bcsm
jodyms
@stales @ABhuret I believe strongly that the tide is changing; and changing for the better. #bcsm
danceswithpens
looking at the comments makes me think when u have active ca, we are angry with the ca; when in remission, we are angry with externals #bcsm
regrounding
Take good care!! XOX RT @Brandie185: I have to go now. Peace and love friends #bcsm
DrAttai
glad to hear RT @Bethlgainer: Q1: My onc was very good w me emotionally. Held my hand and told me he knew this was difficult. Helped. #bcsm
double_whammied
RT @CJMeta: Angry when people say to someone w MBC. Well ... I could walk across the street tomorrow and get killed! #bcsm
ABHuret
@Brandie185 Bye Brandie; see you soon! #bcsm
LGG1
My oncologist asked, talked--and always listened. One of my fav people EVER! #BCSM
chemobrainfog
Yes! RT @feistybluegecko: and when so so many are diagnosed and live with mets, or are taken by mets. I hate, hate cancer #bcsm
DrBeckerSchutte
Leads to anger. RT @jodyms: @regrounding its hard to separate what truly IS progress from BS promotion? #bcsm
double_whammied
RT @FollowHeidi: #bcsm and anger at those who use bc as a platform for a career or political gain without any compassion for actual pati ...
DrAttai
same to you - thanks for stopping by RT @Brandie185: I have to go now. Peace and love friends #bcsm
jodyms
Through this venue, the strength of bloggin and passionate, clear voices: better advocacy is in progress. #bcsm
Bethlgainer
@DrAttai I do love my docs. #BCSM
stales
yes.. RT @DrBeckerSchutte: Leads to anger. RT @jodyms: @regrounding its hard to separate what truly IS progress from BS promotion? #bcsm
stales
yes it is! RT @jodyms: Through this venue, the strength of bloggin and passionate, clear voices: better advocacy is in progress. #bcsm
a4breastcancer
oncologist great, but left practice. I wonder why but found great new one. #BCSM #bcsm
Bethlgainer
YES! RT @feistybluegecko: and when so so many are diagnosed and live with mets, or are taken by mets. I hate, hate cancer #BCSM
MyFabBoobies
RT @CJMeta: People are more comfortable blaming the MBC patients for their disease. Makes them feel safe. #bcsm
crgonzalez
RT @jodyms: Through this venue, the strength of blogging and passionate, clear voices: better advocacy is in progress. #bcsm
annwax
Have to go. Tomorrow I will be conducting a group re wellness. Hv a good night. TY 2 every1 4 allowing me 2 b connected 2 all of u. #bcsm
DrBeckerSchutte
Those are the best docs. RT @LGG1: My oncologist asked, talked--and always listened. One of my fav people EVER! #bcsm
chemobrainfog
Change IS coming RT @jodyms: Through this venue, the strength of bloggin and passionate, clear voices: better advocacy is in progress #bcsm
HeartOverdBars
@jodyms I hope so. Internet has certainly helped me. Also a friend who had local recurrence, went ahead of me so to speak. #bcsm
Bethlgainer
@a4breastcancer Good 4 u 4 finding another good onc. #BCSM
Jrubiner
@Regrounding's doc knows when to make a joke and when to give a hug! RT @Bethlgainer: @DrAttai I do love my docs. #bcsm
jodyms
Q1: For me personally, if I didn't think we were starting to make progress I wouldn't be able to listen deeply. #bcsm
stales
RT @DrBeckerSchutte: Those are the best docs. RT @LGG1: My oncologist asked, talked--and always listened. One of my fav people EVER! #bcsm
chemobrainfog
@annwax G/nite! #bcsm
DrAttai
MT @danceswithpens looking at comments makes me think when u have active ca, are angry w/the ca; when in remission, angry w/externals #bcsm
hashonomy_gus
LIVESTRONG Blog http://t.co/Kf9VIdiC #bcsm #cancer (via @livestrong)
NikiBarrPhD
RT @stales RT @DrBeckerSchutte: Leads to anger. RT @jodyms: @regrounding its hard to separate what truly IS progress from BS promo? #bcsm
brevagen
Hi! First time meeting joining the chat - nice to meet everyone! #bcsm
ABHuret
YES MT @double_whammied: MT @FollowHeidi: And those who use BC as platform for career/political gain w/out compassion for actual pat's #bcsm
regrounding
RT @jodyms: Through this venue, the strength of bloggin and passionate, clear voices: better advocacy is in progress #bcsm
afreshchapter
RT @jodyms: Through this venue, the strength of bloggin and passionate, clear voices: better advocacy is in progress. #bcsm
jodyms
You're rocking tweeps when you're ready for transition the second question is coming up. #bcsm
crgonzalez
@annwax Go get 'em, Ann. Sleep well. #bcsm
JediPD
Anger: Express it! Then let go of it to live the future. #bcsm
Bethlgainer
MT @double_whammied: MT @FollowHeidi: And those who use BC as platform for career/political gain w/out compassion for actual pats #BCSM
MyFabBoobies
My anger with breast cancer comes and goes. Usually its about losing my fertility & my body image issues since reconstruction. #bcsm
nic_mclean
My anger with breast cancer comes and goes. Usually its about losing my fertility & my body image issues since reconstruction. #bcsm
DrBeckerSchutte
True & sucky. RT @CJMeta: People are more comfortable blaming the MBC patients for their disease. Makes them feel safe. #bcsm
regrounding
WELCOME! We're talking about cancer and anger. RT @brevagen: Hi! First time meeting joining the chat - nice to meet everyone! #bcsm
ABHuret
In the beginning, there is so much to process; the anger/frustration often comes later. So does the PTSD. #bcsm
jodyms
Good observation RT @DrAttai: MT @danceswithpens..when u have active ca, are angry w/the ca; when in remission, angry w/externals #bcsm
Bethlgainer
@brevagen Welcome! #BCSM
chemobrainfog
I'm not a mets patient and The Blame Game PISSES ME OFF. That could lead to an old fashioned hissy fit complete w/me hurling glass #bcsm
brevagen
Hope + conviction RT @jodyms: Through this venue, the strength of bloggin and passionate, clear voices: better advocacy is in progress #bcsm
double_whammied
@chemobrainfog Awesome retort, AM! #canceranger #BCSM #icldgethitbyabustomorrowcrap #whywaittiltomorrow?
NikiBarrPhD
RT @ABHuret: In the beginning, there is so much to process; the anger/frustration often comes later. So does the PTSD. #bcsm
jodyms
@JediPD So true. Depending on woman's age, some have to be encouraged to express. As I grew up? "Good" girls were ALWAYS contained. #bcsm
chemobrainfog
Delayed anger. RT @ABHuret: In the beginning, there is so much to process; the anger/frustration often comes later. So does the PTSD. #bcsm
Bethlgainer
MT @danceswithpens..when u have active ca, are angry w/the ca; when in remission, angry w/externals #BCSM
brevagen
@regrounding thanks for the warm welcome :-) #bcsm
LGG1
@brevagen Welcome!! #BCSM
DrAttai
@brevagen glad you could join us - talking about cancer & anger. This chat flies by #bcsm
regrounding
Ducking... MT @chemobrainfog: The Blame Game PISSES ME OFF. That could lead to an old fashioned hissy fit complete w/me hurling glass #bcsm
double_whammied
RT @jodyms: Through this venue, the strength of bloggin and passionate, clear voices: better advocacy is in progress. #bcsm
afreshchapter
Can only stop by for a minute, but am loving reading the tweets tonight. Can't wait to read the transcript...Amen to anger and PTSD #bcsm
a4breastcancer
when NED could actually have delayed anger at the cancer-be 4 so busy treatment #BCSM #bcsm
JulieGoodale
RT @chemobrainfog: Im not a mets patient and The Blame Game PISSES ME OFF. That could lead to an old fashioned hissy fit #bcsm
CJMeta
Yes yes .. anger changes with cancer status. Excellent point. #bcsm
chemobrainfog
@nic_mclean Body image issues are huge. That angers me, too. #bcsm
jodyms
Q2: What can/have you done to transform that energy? Anger is a feeling containing incredible energy. #bcsm
DrAttai
@chemobrainfog oh, no - here she goes...everyone get ready to duck!! #bcsm
ABHuret
Ah, the 'Blame Game'. Hand in hand with the 'positivity' expectation. "You must not have eaten enough broccoli, Vit D, etc" #bcsm
MyFabBoobies
My anger with the "face" of breast cancer survivors being perky women who pick up life as though nothing happened, remains. #bcsm
nic_mclean
My anger with the "face" of breast cancer survivors being perky women who pick up life as though nothing happened, remains. #bcsm
HeartOverdBars
@danceswithpens No remission/NED for me--not yet anyway. But @ 1st DX & treatment & side effects take all the energy. Then big picture #bcsm
brevagen
@nic_mclean how do you cope with the anger? #bcsm
jodyms
@chemobrainfog yes, the PTSD is later - and part of that contains a lot of irritiability. #bcsm
Bethlgainer
hot button MT @chemobrainfog: The Blame Game PISSES ME OFF. That could lead to an old fashioned hissy fit complete w/me hurling glass #BCSM
JediPD
"Holding on to anger is like grasping a hot coal with the intent of throwing it at someone else; you are the one who gets burned." #bcsm
DrAttai
@afreshchapter thanks for stopping by! #bcsm
DrBeckerSchutte
There are so many important points. RT @CJMeta: Yes yes .. anger changes with cancer status. Excellent point. #bcsm
MyFabBoobies
My oncologist was cool and supportive/understanding but he never really questioned my emotional stability. #bcsm
jodyms
@nic_mclean I know. Who are they, anyway:) #bcsm
nic_mclean
My oncologist was cool and supportive/understanding but he never really questioned my emotional stability. #bcsm
sassyshae
@nic_mclean Me, too. I felt like a failure not being one of those perky like nothing happened women. #bcsm
stales
RT @nic_mclean My anger w/ breast cancer comes & goes. Usually its abt losing my fertility & my body image issues since reconstruction #bcsm
chemobrainfog
LOL! RT @DrAttai: @chemobrainfog oh, no - here she goes...everyone get ready to duck!! #bcsm
danceswithpens
another issue of anger for me is hating feeling vulnerable, fearful and uncertain; makes me more angry than others' comments #bcsm
brevagen
RT @jodyms: Q2: What can/have you done to transform that energy? Anger is a feeling containing incredible energy. #bcsm

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