Content from Twitter
| From: | Tue May 29 7:12:00 PDT 2012 |
| To: | Wed May 30 7:12:00 PDT 2012 |
| wegohealth | Today's #HAchat will be on patient identity and how we look at diagnosis: http://t.co/2xDxuNrh us at 3pm ET to discuss | |
| apdolan | RT @wegohealth: Today's #HAchat will be on patient identity and how we look at diagnosis: http://t.co/8mG7wc51 us at 3pm ET to discuss | |
| TomKindlon | @wegohealth You need to have a gap between the bit.ly link and join. Best of luck with the #HAchat today on patient identity. | |
| wegohealth | Today's #HAchat will be on patient identity and how we look at diagnosis: http://t.co/CqUrCLLM - Join us at 3pm ET to discuss | |
| apdolan | RT @wegohealth: Today's #HAchat is on patient identity and how we look at diagnosis: http://t.co/zHxjR6Mp - Join us at 3pm ET to discuss | |
| DiabetesSocMed | RT @wegohealth: Today's #HAchat will be on patient identity and how we look at diagnosis: http://t.co/CqUrCLLM - Join us at 3pm ET to discuss | |
| TuftsPREPpain | Sounds like a great topic today on #hachat at 3 PM EDT Exploring pt identity -- how does/doesn't illness define you http://t.co/3yFfgrlg | |
| pamressler | Sounds like a great topic today on #hachat at 3 PM EDT Exploring pt identity -- how does/doesn't illness define you http://t.co/lhfAAnpy | |
| SansumDiabetes | RT @wegohealth: Today's #HAchat will be on patient identity and how we look at diagnosis: http://t.co/CqUrCLLM - Join us at 3pm ET to discuss | |
| sikcell | RT @wegohealth: Today's #HAchat will be on patient identity and how we look at diagnosis: http://t.co/CqUrCLLM - Join us at 3pm ET to discuss | |
| wegohealth | What’s the difference between how you see yourself pre-diagnosis & post-diagnosis? Discuss with us in 1hr: http://t.co/QOa3y0JN #HAchat | |
| TiffanyAndLupus | Whoaaaa! Did ya'll see the #HaChat topic for the @wegohealth chat today at 3pm est? "Pre-diagnosis you vs post-diagnosis you" I'm SO there! | |
| apdolan | How can we work together to make newly diagnosed patients feel comfortable with themselves? Join the #HAchat in 1hr to discuss! | |
| AgainstLupus | RT @apdolan: How can we work together to make newly diagnosed patients feel comfortable with themselves? Join the #HAchat in 1hr to discuss! | |
| SLEYoungLeaders | RT @apdolan: How can we work together to make newly diagnosed patients feel comfortable with themselves? Join the #HAchat in 1hr to discuss! | |
| TiffanyAndLupus | RT @apdolan: How can we work together to make newly diagnosed patients feel comfortable with themselves? Join the #HAchat in 1hr to discuss! | |
| intractablepain | RT @wegohealth: How'd ya see yourself pre-diagnosis vs. post? Discuss in 20m http://t.co/OyOgW59o #HAchat #chronicpain #chronicillness | |
| wegohealth | Join us in 30 to talk patient identity (diagnosis, perception, labels, &more) - use #HAchat or visit: http://t.co/WzGttRNw #hcsm | |
| EricGlazer | RT @wegohealth: Join us in 30 to talk patient identity (diagnosis, perception, labels, &more) - use #HAchat or : http://t.co/75HJu1U4 #hcsm | |
| apdolan | RT @wegohealth: Join us in 30 to talk patient identity (diagnosis, perception, labels, &more) #HAchat http://t.co/0XlbXcoi #hcsm | |
| wegohealth | About to start our tweetchat about patient identity - join us! http://t.co/WzGttRNw #HAchat | |
| marandacarvell | RT @wegohealth: About to start our tweetchat about patient identity - join us! http://t.co/qiJp6Wzm #hachat | |
| LifeUnbound | RT @wegohealth: About to start our tweetchat about patient identity - join us! http://t.co/WzGttRNw #HAchat | |
| lauriepna | Join me for a #HAchat TweetChat at: http://t.co/5e6SUrm8 #HAchat | |
| wegohealth | Welcome to the Health Activist Tweetchat! Today we'll be discussing patient identity, diagnosis, & more. #HAchat | |
| TiffanyAndLupus | RT @wegohealth: Welcome to the Health Activist Tweetchat! Today we'll be discussing patient identity, diagnosis, & more. #HAchat | |
| LifeUnbound | RT @wegohealth: Welcome to the Health Activist Tweetchat! Today we'll be discussing patient identity, diagnosis, & more. #HAchat | |
| TiffanyAndLupus | The @Wegohealth #HaChat starts NOW, join us as we discuss our patient identities & diagnosis ~> http://t.co/RppT0tkH #HaChat | |
| wegohealth | Let’s quickly introduce ourselves: Name/username, blog name or URL, health community or condition & hashtag about you. #HAchat | |
| TiffanyAndLupus | The @Wegohealth #HaChat starts NOW, join us as we discuss our patient identities & diagnosis ~> http://t.co/gsYAvB52 #HaChat | |
| lauriepna | hi im laurie recovering bipolar 2 and wego health activist
#HAchat | |
| HealthcareNovel | @tiffanyandlupus #hachat ?? Sounds interesting, may just have to set up a stream for that! Hi @wegohealth | |
| caitlin_cumming | Caitlin, Community Coordinator Extrordinaire here at @wegohealth. Excited for today's #HAchat! #HAchat | |
| wegohealth | In May we’re focusing on Setting The Record straight and today’s chat will focus on that – with regards to identity & diagnosis. #HAchat | |
| wegohealth | Welcome and feel free to jump in at any time! #HAchat | |
| wegohealth | Today let’s start by looking at how people’s health conditions play into how they see themselves. #HAchat | |
| wegohealth | Topic 1: How do people’s health conditions (symptoms, diagnoses, treatment, etc) factor into how they see themselves? #HAchat | |
| serenebutterfly | Rhiann here from Brain Lesion and Me (http://t.co/cXyfUmFZ)
#hachat | |
| apdolan | RT @wegohealth: Topic 1: How do people’s health conditions (symptoms, diagnoses, treatment etc) factor into how they see themselves? #HAchat | |
| CIRants | RT @wegohealth: About to start our tweetchat about patient identity - join us! http://t.co/dQ4ydPWD #HAchat | |
| TiffanyAndLupus | @HealthcareNovel Yes! #HaChat stands for :Health Activist Chat. Hey @wegohealth this is Robert, awesome health advocate :) | |
| KatharineS84 | Katharine here! I blog at From A to Pink about living w/ #cysticfibrosis. http://t.co/FjlKSfcR #HAchat | |
| CIRants | Sorry I'm late! Hi! #HAchat | |
| marandacarvell | @wegohealth sometimes you become the label. it becomes your defining characteristic #hachat | |
| KatharineS84 | RT @wegohealth Topic 1: How do people’s health conditions (symptoms, diagnoses, treatment, etc) factor into how they see themselves? #HAchat | |
| caitlin_cumming | @HealthcareNovel Welcome, Robert! Hope you'll join us. Any friend of @TiffanyAndLupus is a friend of @wegohealth #HAchat | |
| LifeUnbound | RT @wegohealth: Today let’s start by looking at how people’s health conditions play into how they see themselves. #HAchat | |
| marandacarvell | participating with a 3 year old sleeping across my chest. can barely reach the keyboard :) #hachat | |
| caitlin_cumming | @marandacarvell such dedication! #HAchat | |
| wegohealth | RT @marandacarvell: @wegohealth sometimes you become the label. it becomes your defining characteristic #HAchat | |
| serenebutterfly | T1: Although our conditions do not define us as a person, sometimes it's all that other people see - asking us how we are
#hachat | |
| KatharineS84 | T1: It can be difficult to see yourself withOUT the disease. #cysticfibrosis #HAchat | |
| serenebutterfly | We have to remember our conditions are not who we are but rather that it is a part of us #hachat | |
| wegohealth | RT @KatharineS84: T1: It can be difficult to see yourself withOUT the disease. #cysticfibrosis #HAchat | |
| CIRants | RT @KatharineS84: T1: It can be difficult to see yourself withOUT the disease. #cysticfibrosis #HAchat | |
| wegohealth | T1.1: What’s the difference between how you see yourself pre-diagnosis and post-diagnosis? #HAchat | |
| wegohealth | RT @serenebutterfly: We have to remember our conditions are not who we are but rather that it is a part of us #HAchat | |
| KatharineS84 | T1: I struggled w/ppl finding out I had CF before they got to know ME. Didn't want them to only see me as "sick." #HAchat | |
| CIRants | It's easy to feel "less than" other people, or automatically more limited than others. #HAchat | |
| caitlin_cumming | diagnosis can feel like you're losing your identity. now that you have X you can no longer do Y. #HAchat | |
| lauriepna | sometimes i feel stuck once illness identified ( a fence sitter) move through it with supportive therapy, than back to work mode #HAchat | |
| LifeUnbound | T1: I think sometimes people start to define themselves by their illnesses and negative symptoms. #HAchat | |
| KatharineS84 | T1.1: For the most part I see myself as the same, but stronger. It's my feelings toward the future that have changed. #HAchat | |
| Dyverse_Steele | t1 sometimes the stigma of disease can even affect your own thinking maybe it is in my head a little bit #hachat | |
| CIRants | Yes! MT @KatharineS84 T1: I struggled w/ppl finding out I had CF before they got to know ME. Didn't want them 2 only c me as "sick." #HAchat | |
| LifeUnbound | RT @wegohealth: RT @serenebutterfly: We have to remember our conditions are not who we are but rather that it is a part of us #HAchat | |
| serenebutterfly | T1.1 - Before the diagnosis I thought myself as being weird or weak, after I realise it's because I have a neurological condition
#hachat | |
| wegohealth | RT @KatharineS84 T1: I struggled w/ppl finding out I had CF before they got to know ME. Didn't want them to only see me as "sick." #HAchat | |
| TiffanyAndLupus | Ooops! Forgot my intro. pardon my lateness! Tiffany, lupus/health blogger at http://t.co/ExJzDA3A, #GlitteratiMermaid :) #HaChat | |
| wegohealth | Yes RT @Dyverse_Steele: t1 sometimes the stigma of disease can even affect your own thinking maybe it is in my head a little bit #HAchat | |
| CIRants | Getting a diagnosis was a relief - I had a course of action after 11 years of not knowing what was wrong. #HAchat | |
| wegohealth | RT @LifeUnbound: T1: I think sometimes people start to define themselves by their illnesses and negative symptoms. #HAchat | |
| serenebutterfly | RT @caitlin_cumming: diagnosis can feel like youre losing your identity. now that you have X you can no longer do Y. #hachat | |
| TiffanyAndLupus | T1: For many their illness is a crutch, a destroyer of all they did & loved. For some denial is better than accepting our reality... #HaChat | |
| wegohealth | Excellent segue: RT @CIRants: Getting a diagnosis was a relief - I had a course of action after 11yr of not knowing what was wrong. #HAchat | |
| wegohealth | For our next topic let’s talk about diagnosis in particular. #HAchat | |
| KatharineS84 | T1.1: Having an answer to why I was sick all the time was a relief. Initially I felt more in control. #HAchat | |
| KatharineS84 | Agreed! RT @LifeUnbound: T1: I think sometimes people start to define themselves by their illnesses and negative symptoms. #HAchat | |
| CIRants | Diagnosis can provide community - other who understand and who can provide insight. #HAchat | |
| KatharineS84 | RT @CIRants: Getting a diagnosis was a relief - I had a course of action after 11 years of not knowing what was wrong. #HAchat | |
| TiffanyAndLupus | T1: I know that during my lupus diagnosis I fell into a deep despair and a cold, lonely, and frustrating state of self-pity. #HaChat | |
| TomKindlon | T1.1: Before the diagnosis I was full of doubts about myself: wondering was I doing something wrong in my lifestyle. #HAchat | |
| TiffanyAndLupus | RT @wegohealth: T1.1: What’s the difference between how you see yourself pre-diagnosis and post-diagnosis? #HAchat | |
| marandacarvell | @serenebutterfly me too #hachat | |
| serenebutterfly | T1.1 The reactions have been different post diagnosis - more understanding now they know it's not 'in my head' or imagined #hachat | |
| TiffanyAndLupus | Ooops! Forgot my intro. pardon my lateness! Tiffany, lupus/health blogger at http://t.co/kKEfL4Rz, #GlitteratiMermaid :) #HaChat | |
| Dyverse_Steele | t1 when you are first diagnosed with any chronic illness you will change #hachat | |
| wegohealth | Topic 2: Does a definitive diagnosis (with a name, etc) make a difference? How? #HAchat | |
| MakeThisLookAwe | T1:1 I'm 2 completely different people before/after my condition. I can't be her anymore. Her activities hurt. She is not me. #HAchat | |
| wegohealth | RT @TomKindlon: T1.1: Before the diagnosis I was full of doubts about myself: wondering was I doing something wrong in my lifestyle. #HAchat | |
| mandylipka | Been there... MT @TiffanyAndLupus: For many illness is destroyer of all they loved. For some denial is better than accepting reality #HaChat | |
| wegohealth | RT @Dyverse_Steele: t1 when you are first diagnosed with any chronic illness you will change #HAchat | |
| Dyverse_Steele | t1.1 you can no longer be as care free as you once was #hachat | |
| TiffanyAndLupus | T1.1: I have accepted that I have lupus. That I am not whats considered "normally healthy." I feel much lighter after leaving denial #HaChat | |
| LifeUnbound | RT @wegohealth: RT @Dyverse_Steele: t1 when you are first diagnosed with any chronic illness you will change #HAchat | |
| MakeThisLookAwe | I'm participating in Health Activist chat on TweetChat! http://t.co/7uc0zf9o (Sorry I'm late... log-in issues ^_^) #HAchat | |
| KatharineS84 | T2: Having a diagnosis has pros & cons. It gives you some power, some options, but it also opens up other scary doors. #HAchat | |
| mandylipka | Ditto! MT @MakeThisLookAwe: I'm 2 completely different people before/after. Can't be her anymore. Her activities hurt. She is not me #HAchat | |
| marandacarvell | @wegohealth it's been good for my emotional health in many ways. i know i have A, B, C and not just tired/crazy/whatever #hachat | |
| MakeThisLookAwe | RT @wegohealth: Topic 2: Does a definitive diagnosis (with a name, etc) make a difference? How? #HAchat | |
| serenebutterfly | T2: I found my diagnosis bittersweet - upset as there's nothing they can do to fix me but relieved that there was a name to it
#hachat | |
| marandacarvell | @wegohealth also we've made some life changes as a family now that i know i'm not going to 'get better'. has made life easier #hachat | |
| TomKindlon | T2: Diagnosis helped as could lower expectations: wasn't expected to keep up to the level of healthy people, which I couldn't do #HAchat | |
| CIRants | MT @KatharineS84: T2: Having a dx has pros & cons. It gives you some power, some options, but it also opens up other scary doors. #HAchat | |
| wegohealth | MT @KatharineS84: T2: a diagnosis has pros & cons. It gives you some power, some options, but it also opens up other scary doors #HAchat | |
| caitlin_cumming | Exactly, means you have to do something about it RT @KatharineS84: It gives you some power, but it also opens up other scary doors. #HAchat | |
| TiffanyAndLupus | T1.1: Post-diagnosis me now feels very empowered by my life choices after diagnosis. By owning & admitting it I feel much happier. #HaChat | |
| TiffanyAndLupus | RT @wegohealth: Topic 2: Does a definitive diagnosis (with a name, etc) make a difference? How? #HAchat | |
| MakeThisLookAwe | Some of my diagnoses opened doors for treatment. Knowing what it was was a relief. We weren't just flying blind anymore. #HAchat | |
| pamressler | Hi all, sorry to be late #hachat | |
| serenebutterfly | T2: Diagnosis is also a great tool to finding out more about symptoms being experienced and what is going on with your body, etc #hachat | |
| marandacarvell | @wegohealth it's a lot easier to have a plan of action, even if i don't always love the plan ;) #hachat | |
| wegohealth | MT @serenebutterfly: T2: I found my diagnosis bittersweet - upset theres nothing they can do but relieved that theres a name to it #HAchat | |
| TiffanyAndLupus | T2: That period of "un-diagnosed or misdiagnosis" are frustrating & scary. Finally knowing the name of the issue brings some relief. #HaChat | |
| mandylipka | T1: Keep saying I would be such different person without. Much smarter, stronger, wiser now. Don't think I'd like alternative me #HAchat | |
| TomKindlon | T2: Diagnosis helped me a lot: advice one gives to a healthy person with my symptoms isn't what one gives to somebody with #MECFS #HAchat | |
| PurdueMocha | Sorry I'm late! Mocha here, blogging at http://t.co/Um6RALto part of the #DOC with t1 diabetes&a butt load of other stuff #HAchat | |
| LifeUnbound | I was too caught up in whether people believed me or not before I found out I had an Systemetic Autoimmune Illness making it worse.#HAchat | |
| mandylipka | T2: 2nd opinion was bigger than dx- at young age, I needed more guidance and someone who actually cared. Who knew how to talk to me #HAchat | |
| LifeUnbound | T2: Definetly! Though many people fear labels, I believe just "knowing" specifically what you have relieves a lot of anxiety. #HAchat | |
| MakeThisLookAwe | T2: The diagnosis (#dx) was never scary for me. I was already suffering/surviving the symptoms. #HAchat | |
| marandacarvell | @TiffanyAndLupus absolutely. we went thru a period when we thought i was going to die and i was terrified to be alone #hachat | |
| pamressler | @TiffanyAndLupus T2 Yes, having a name for an illness somehow brings validity to symptoms #hachat | |
| CIRants | Diagnosis sets expectations - higher or lower, they are what they are, and it provides a chance to accept them. #HAchat | |
| wegohealth | Now let's talk semantics. #HAchat | |
| serenebutterfly | Agreed!! RT @pamressler: @TiffanyAndLupus T2 Yes, having a name for an illness somehow brings validity to symptoms #hachat | |
| lauriepna | diagnosis was relief laurie wego, gives oportunities 2 seek support from others with like diagnosis , know i am not alone anymore
#HAchat | |
| PurdueMocha | T1: I see all of my health stuff as part of me, like my hair color or my sense of humor, at least on a good day. #HAchat | |
| mandylipka | T1.1 @TiffanyAndLupus exactly! But I'm watching someone else deal with it very differently right now, too. We all have our moments. #HAchat | |
| wegohealth | T2.1: In your community, in particular, are there labels/names that are used as a way to unite people post-diagnosis? #HAchat | |
| CIRants | RT @pamressler: @TiffanyAndLupus T2 Yes, having a name for an illness somehow brings validity to symptoms #HAchat | |
| marandacarvell | @wegohealth dx also helps explain to ppl what is 'wrong' with you. I have XYZ is something ppl can understand #hachat | |
| wegohealth | Some sort of "proof" yes RT @pamressler: T2 Yes, having a name for an illness somehow brings validity to symptoms #HAchat | |
| marandacarvell | @wegohealth compared to a random list of symptoms #hachat | |
| TiffanyAndLupus | RT @wegohealth T2.1: In your community, in particular are there labels/names that are used as a way to unite people post-diagnosis? #HaChat | |
| MakeThisLookAwe | RT @wegohealth: T2.1: In your community, are there labels/names that are used as a way to unite people post-diagnosis? #HAchat | |
| LifeUnbound | RT @wegohealth: Some sort of "proof" yes RT @pamressler: T2 Yes, having a name for an illness somehow brings validity to symptoms #HAchat | |
| wegohealth | Yes good point: RT @marandacarvell: dx also helps explain to ppl what is wrong with you. I have XYZ is something ppl can understand #HAchat | |
| PurdueMocha | T1.1: I don't see myself differently because of a diagnosis. I see myself being relived, since this "thing" now has a name. #HAchat | |
| TomKindlon | T2: Diagnosis helped as could call in support of other people: couldn't do that when didn't have a label for my symptoms #HAchat | |
| lauriepna | yes at Wh T2 lables like survivor, mentoring like people,activist #HAchat | |
| TiffanyAndLupus | T2.1: In the lupus community, I like to think of us as "Lupus Warriors", we often call each other "lupies". :) #HaChat | |
| TomKindlon | RT @wegohealth: Some sort of "proof" yes RT @pamressler: T2 Yes, having a name for an illness somehow brings validity to symptoms #HAchat | |
| LifeUnbound | RT @TiffanyAndLupus: T2.1: In the lupus community, I like to think of us as "Lupus Warriors", we often call each other "lupies". :) #HaChat | |
| wegohealth | 2.1: I have to give a shout-out to #spoonie for being such a uniting/inclusive word - despite the wide range of diagnoses/symptoms #HAchat | |
| PurdueMocha | T2: It helps me. It lets me know that there are things to do. It helps me focus my research. It lets me connect to others. #HAchat | |
| MakeThisLookAwe | T2:1 For all invisible diseases, pre- and post-diagnosis, But You Don't Look Sick's #spoonie!!! #bydls #HAchat | |
| KatharineS84 | T2.1: We refer to each other and cysters (females) and fibros (males). It does make it feel like more of a "club" than an illness. #HAchat | |
| TiffanyAndLupus | T2.1: Some in lupus com refer to themselves as butterflies which is not only the shape of facial rash we get; it's a symbol of hope. #HaChat | |
| wegohealth | RT @lauriepna: yes at Wh T2 lables like survivor, mentoring like people,activist #HAchat | |
| wegohealth | Yes! RT @MakeThisLookAwe: T2:1 For all invisible diseases, pre- and post-diagnosis, But You Dont Look Sicks #spoonie!!! @bydls #HAchat | |
| CIRants | MT @wegohealth: 2.1: I have to give a shout-out to #spoonie for being such a uniting/incl word - despite the wide range of dx/symp #HAchat | |
| KatharineS84 | @caitlin_cumming Exactly! And that there are some things out of your control, inevitables. #hachat | |
| TiffanyAndLupus | T2.1: Having something to call ourselves, like "lupies" helps us find each other on social networks like Twitter! #HaChat | |
| MakeThisLookAwe | T2:1 My disease is rare (less than 400 cases), so I call us #medicalunicorns #HAchat | |
| caitlin_cumming | LOVE THIS. @KatharineS84: We refer to each other and cysters (females) and fibros (males). #HAchat | |
| wegohealth | Love this! RT @KatharineS84 T2.1: We refer to each other and cysters (females) and fibros (males). More of a "club" than an illness #HAchat | |
| serenebutterfly | T2.1: There are no names or labels that I use as I have yet to meet anyone with the same diagnoses as me so get support via symptoms #hachat | |
| marandacarvell | terms like #spoonie help ppl connect and create an instant community of ppl who 'get' you #hachat | |
| TiffanyAndLupus | T1.1: I get confused by backlash I've gotten for talking about lupus so much, even from patients! Some feel I let it dictate my life #HaChat | |
| wegohealth | T2.2: Conversely – any words/phrases that you do not identify with? (Example: Diabetic vs. Person With Diabetes) #HAchat | |
| serenebutterfly | I love this!! RT @MakeThisLookAwe: T2:1 My disease is rare (less than 400 cases), so I call us #medicalunicorns #hachat | |
| marandacarvell | @wegohealth love @whatthejules #chronicallyawesome hashtag for uniting others who lift me up, don't bring me down, yet still get me #hachat | |
| wegohealth | Important to note: MT @serenebutterfly: T2.1 No names/labels I use as Ive yet to meet 1w/ same diagnoses; I get support via symptoms #HAchat | |
| PurdueMocha | T2.1: Yes and no. In the #DOC, we differentiate type, but that's about it. A lot of people are miss-typed, so...yeah. #HAchat | |
| lauriepna | at marandacarvell what does "spoonie mean?
#HAchat | |
| KatharineS84 | T2.2: I'm not a fan of terms like "suffering from." Makes it seem like my life is constantly unbearable. #HAchat | |
| wegohealth | Yes! RT @marandacarvell: terms like #spoonie help ppl connect and create an instant community of ppl who get you #HAchat | |
| MakeThisLookAwe | @serenebutterfly Ty! I even got to meet another unicorn! http://t.co/YVw2sH5C #HAchat | |
| wegohealth | RT @KatharineS84 T2.2: I'm not a fan of terms like "suffering from." Makes it seem like my life is constantly unbearable. #HAchat | |
| PurdueMocha | T2.2: I prefer to be called a "person with diabetes" because it forces people to remember I'm a person too. #HAchat | |
| TomKindlon | T2.2 Yuppie Flu is one term that has been used instead of M.E. or Chronic Fatigue Syndrome. It's not a good term at all. #HAchat | |
| JBBC | @wegohealth: T2.2 any words/phrases that you do not identify with? "sufferer" #HAchat | |
| PurdueMocha | RT @KatharineS84: T2.2: I'm not a fan of terms like "suffering from." Makes it seem like my life is constantly unbearable. #HAchat | |
| MakeThisLookAwe | @KatharineS84 Oh, but sometimes I *was* "suffering from," _and_ my life was unbearable (re: pain control) #HAchat | |
| Wyldceltic1 | RT @KatharineS84: T2.2: I'm not a fan of terms like "suffering from." Makes it seem like my life is constantly unbearable. #HAchat | |
| LifeUnbound | RT @wegohealth: Yes! RT @marandacarvell: terms like #spoonie help ppl connect and create an instant community of ppl who get you #HAchat | |
| Dyverse_Steele | some people would rather hide their illness from everyone including themselves sometimes it takes a strong person to talk #hachat | |
| CIRants | See this for the spoon theory http://t.co/CuXJkPR2 RT @lauriepna at marandacarvell what does "spoonie mean? #HAchat | |
| serenebutterfly | RT @wegohealth: Yes! RT @marandacarvell: terms like #spoonie help ppl connect and create an instant community of ppl who get you #hachat | |
| MakeThisLookAwe | RT @TomKindlon: T2.2 Yuppie Flu is one term that has been used instead of M.E. or Chronic Fatigue Syndrome. Not a good term at all. #HAchat | |
| Dyverse_Steele | i am a fan of everything as long as you keep talking about it through talking/being social comes awareness and spiritual healing #hachat | |
| wegohealth | Always great to re-share this! Thanks RT @CIRants See this for the spoon theory http://t.co/yomBqyGN #HAchat | |
| mandylipka | @wegohealth @LifeUnbound @KatharineS84 check out this awesome post about dx, treatment, and the words we use: http://t.co/Croes252 #HAchat | |
| wegohealth | Let’s talk about how a diagnosis or label can influence how others see us. #HAchat | |
| JonnayD | @TiffanyAndLupus I support ur cause. Although not dx w/the condition I know what its lk 4many who are. Love ur dedication&commitment #HaChat | |
| KatharineS84 | @MakeThisLookAwe Me too! But when someone is talking ab me, I don't want to hear "she suffers from cystic fibrosis." That's not me. #HAchat | |
| wegohealth | Topic 3: - How does a diagnosis play into how others see you? #HAchat | |
| julianna12369 | Hi all, It's jules of whatthejules. sorry I am late
#HAchat | |
| KatharineS84 | @mandylipka Thank you! This looks like a great read. #HAchat | |
| TiffanyAndLupus | Yes! RT @wegohealth: Let’s talk about how a diagnosis or label can influence how others see us. #HaChat | |
| MakeThisLookAwe | For all your hashtag definition needs! http://t.co/llAB4fNK And for #spoonie see http://t.co/WxVEwuFK #HAchat | |
| pamressler | Agree, love this RT @wegohealth: Always great to re-share this! TY RT @CIRants See this for the spoon theory http://t.co/8VLZ3o9M #hachat | |
| MrsTeepot | RT @wegohealth: Let’s talk about how a diagnosis or label can influence how others see us. #HAchat | |
| julianna12369 | RT @wegohealth: Topic 3: - How does a diagnosis play into how others see you? #HAchat | |
| PurdueMocha | T3: lots of strangers see me as something to be pitied, or that I did something to deserve it, or some combination. #HAchat | |
| Dyverse_Steele | T3 word stigma stigma stigma lawd knows we have a hard enough time dealing with us then we got to deal with others jeez lol #hachat | |
| serenebutterfly | T3: Diagnosis just reminds people that I am unwell; sometimes that's all they see. People ask how my symptoms are, not 'how I am'
#hachat | |
| PurdueMocha | T3: My friends see me as a "dia-bad-ass" #HAchat | |
| TiffanyAndLupus | RT @wegohealth: Topic 3: - How does a diagnosis play into how others see you? #HAchat | |
| mandylipka | <3 @KatharineS84: We refer to each other as cysters (females) & fibros (males). It makes it feel like more of a "club" than illness #HAchat | |
| wegohealth | T3 is often where our myth/misconceptions come into play... #HAchat | |
| MakeThisLookAwe | My pain & reactions to it became legitimate RT @wegohealth: Topic 3: How does a diagnosis play into how others see you? #HAchat | |
| TiffanyAndLupus | I LOVE this SO hard! #dsma RT @PurdueMocha T3: My friends see me as a "dia-bad-ass" #HaChat | |
| serenebutterfly | T3: Not all conditions are visible however, and my symptoms such as balance issues can be misconstrued as being drunk #hachat | |
| CIRants | For some people, diagnosis "justifies" my "odd" movements or actions. #HAchat | |
| Dyverse_Steele | waves at Tiffany hey beautiful one #hachat | |
| MakeThisLookAwe | @KatharineS84 Oh, absolutely... we need to be sensitive. I say suffering from pain, but surviving disease ^_^ #HAchat | |
| TiffanyAndLupus | T3: Post-diagnosis varies depending on the persons friends & family. Many have different reactions. Some good, some bad. #HaChat | |
| MyPerog | RT @TiffanyAndLupus: I LOVE this SO hard! #dsma RT @PurdueMocha T3: My friends see me as a "dia-bad-ass" #HaChat | |
| TiffanyAndLupus | *swoops in for a big bear hug* :) RT @Dyverse_Steele: waves at Tiffany hey beautiful one #HaChat | |
| CIRants | RT @MakeThisLookAwe: @KatharineS84 Oh, absolutely... we need to be sensitive. I say suffering from pain, but surviving disease ^_^ #HAchat | |
| MakeThisLookAwe | Too cool not to pass on... RT: @PurdueMocha T3: My friends see me as a "dia-bad-ass" #HAchat | |
| KatharineS84 | @makethislookawe Yes! I like "surviving" or "thriving with." Has a much more positive spin on someone's overall quality of life. #hachat | |
| wegohealth | If the perception of others isn't exactly what you'd like... T3.1 Have you ever confronted stereotypes/misconceptions directly? How? #HAchat | |
| serenebutterfly | T3: My family are more sympathetic; all my symptoms are now accounted for and not caused by anxiety and am not imagining it #hachat | |
| marandacarvell | @wegohealth ppl are more accepting of my limitations now that i 'have' something #hachat | |
| TomKindlon | T3: video: "Stuff People Say to M.E. sufferers" http://t.co/IqOZdilM (I didn't make it) #HAchat | |
| LifeUnbound | RT @wegohealth: Topic 3: - How does a diagnosis play into how others see you? #HAchat | |
| lauriepna | at marandacarvell thanks for the awesome spoon description enlightening #HAchat | |
| EatwiseRx | RT @tiffanyandlupus: I LOVE this SO hard! #dsma RT @PurdueMocha T3: My friends see me as a "dia-bad-ass" #HaChat | |
| MakeThisLookAwe | @KatharineS84 "surviving" or "thriving with" - it gives value to the struggle and recognizes all the hard work :^D #HAchat | |
| caitlin_cumming | RT @TomKindlon: video: "Stuff People Say to M.E. sufferers" http://t.co/kOGTFXxp (I didn't make it) #HAchat #HaChat | |
| TiffanyAndLupus | T3: Some of my friends felt that my diagnosis made me "act" more sick. Pffft! They were in denial that my health was just declining. #HaChat | |
| MrsTeepot | RT @wegohealth: Always great to re-share this! Thanks RT @CIRants See this for the spoon theory http://t.co/yomBqyGN #HAchat | |
| wegohealth | RT @TomKindlon T3: video: "Stuff People Say to M.E. sufferers" http://t.co/A7yVOiRF (I didn't make it) #HAchat | |
| LifeUnbound | T3: Accomodations started being made to help me. I don't have to fight as much anymore for advocacy and help. #HAchat | |
| KatharineS84 | @MakeThisLookAwe Exactly! Gives us credit rather than pity :) #HAchat | |
| julianna12369 | T3: this is why I like #chronicallyawesome so much. We are awesome!
#HAchat | |
| TiffanyAndLupus | T3: Some feel that when you speak about your illness/diagnosis repeatedly that you're letting your disease take over....
#HaChat | |
| PurdueMocha | T3.1: Yeah, I've tried to give information and different resources, but people stuck in their ways don't listen very well. #HAchat | |
| CIRants | RT @julianna12369: T3: this is why I like #chronicallyawesome so much. We are awesome! #HAchat | |
| MakeThisLookAwe | AMEN!! RT @KatharineS84: @MakeThisLookAwe Exactly! Gives us credit rather than pity :) #HAchat | |
| lauriepna | T3 a deficit people are supportive at the onset than drop the ball and never talk about it again #HAchat | |
| KatharineS84 | T3.1: I confront stereotypes by living my life w/ #cysticfibrosis in a positive way. I share my story & answer any & all questions. #HAchat | |
| TomKindlon | RT @LifeUnbound: T3: Accomodations started being made to help me. I don't have to fight as much anymore for advocacy and help. #HAchat | |
| TiffanyAndLupus | T3: Fellow patients had different reactions to my speaking out about lupus. More community, comfort, understanding, and empowerment. #HaChat | |
| TiffanyAndLupus | !!!! THIS RT @MakeThisLookAwe: AMEN!! RT @KatharineS84: @MakeThisLookAwe Exactly! Gives us credit rather than pity :) #HaChat | |
| wegohealth | For our last topic let’s talk about how we can help others come to terms with themselves after diagnosis or new health challenges. #HAchat | |
| wegohealth | T4: What tips do you have for someone who is coming to terms with themselves as a patient (pre or post-diagnosis)? #HAchat | |
| CIRants | T3.1 I am straightforward and as informative as possible. Mostly it's ignorance & I try to correct it. #HAchat | |
| LifeUnbound | T3: People who do not have relatives or friends w/ chronic illness sometimes undermine the amount of pain i'm capable of feeling. #HAchat | |
| LifeUnbound | RT @MakeThisLookAwe: AMEN!! RT @KatharineS84: @MakeThisLookAwe Exactly! Gives us credit rather than pity :) #HAchat | |
| TiffanyAndLupus | T3: Learning to accept that some won't handle our diagnosis well no matter how much we try to educate them. This doesn't reflect us! #HaChat | |
| julianna12369 | RT @wegohealth: let’s talk about how we can help others come to terms with themselves after diagnosis or new health challenges. #HAchat | |
| CIRants | Yes! RT RT @MakeThisLookAwe: AMEN!! RT @KatharineS84: @MakeThisLookAwe Exactly! Gives us credit rather than pity :) #HAchat | |
| LifeUnbound | RT @wegohealth: T4: What tips do you have for someone who is coming to terms with themselves as a patient (pre or post-diagnosis)? #HAchat | |
| wegohealth | RT @CIRants: T3.1 I am straightforward and as informative as possible. Mostly its ignorance & I try to correct it. #HAchat | |
| TiffanyAndLupus | @LifeUnbound Yes, some will be insensitive due to ignorance. I try not to think ill of them....it's hard though <3 #HaChat | |
| mandylipka | T4: Take it one day at a time. Your dx doesn't define you, you define your dx. And as always, be your own advocate! #HAchat | |
| julianna12369 | T4: I am in the process of making FAQ's, White Papers and TIPS that are more from a patient perspective, upbeat and hopeful #HAchat | |
| lauriepna | T4 accept and come to terms with it ourself than b activist and talk about it.i plan to amend my works best practice in managing it #HAchat | |
| TiffanyAndLupus | RT @wegohealth: T4: What tips do you have for someone who is coming to terms with themselves as a patient (pre or post-diagnosis)? #HaChat | |
| mandylipka | @julianna12369 great to hear - would love to see final product #HAchat | |
| PurdueMocha | T4: You are not alone. It is OK to have all these emotions. It's OK to be you. #HAchat | |
| wegohealth | RT @mandylipka: T4: Take it one day at a time. Your dx doesnt define you, you define your dx. And as always, be your own advocate! #HAchat | |
| LifeUnbound | T4: It's not your fault. Remember that. #HAchat | |
| serenebutterfly | T4: I would say after diagnosis, people should read blogs of other patients to see the 'real story' instead of some horror stories #hachat | |
| MakeThisLookAwe | RT @wegohealth: T4: What tips do you have for someone who is coming to terms with themselves as a patient (pre or post-diagnosis)? #HAchat | |
| julianna12369 | T4: I think that someone's first intro to their dx should be hopeful, not frightening #HAchat | |
| Blairnboca | @wegohealth @Dyverse_Steele : I agree #HAchat #fibromyalgia | |
| wegohealth | Love to read it! MT @julianna12369: T4: Im in the process of making FAQs, White Papers &TIPS from a pt perspective, upbeat & hopeful #HAchat | |
| CIRants | T4: Do your own research and get informed so you don't believe the myths. #HAchat | |
| CIRants | Me too! RT @mandylipka: @julianna12369 great to hear - would love to see final product #HAchat | |
| wegohealth | RT @LifeUnbound: T4: Its not your fault. Remember that. #HAchat | |
| serenebutterfly | T4: Also find some great support groups or online community for invaluable support, advice and to meet others like yourself #hachat | |
| julianna12369 | T4: so my first tip is, don't go looking for all the worst case info, look for those of us who live well daily with our DX #HAchat | |
| wegohealth | Agree! MT @serenebutterfly: T4: After diagnosis, read blogs of other patients to see the real story instead of some horror stories #HAchat | |
| serenebutterfly | RT @julianna12369: T4: I think that someones first intro to their dx should be hopeful, not frightening #hachat | |
| TomKindlon | T4: (Tips for "new" patients) "Things work out best for those who make the best out of how things work out" #HAchat | |
| wegohealth | Yes! RT @PurdueMocha: T4: You are not alone. It is OK to have all these emotions. Its OK to be you. #HAchat | |
| lauriepna | thanks for the awesome input all #HAchat | |
| TiffanyAndLupus | T4: Acceptance of your illness is tough but it is NOT impossible. Leaving the land of denial brings relief & power. It's up to us. #HaChat | |
| julianna12369 | You can bet I will make a big deal out of it when it's done! RT @CIRants: Me too! RT @mandylipka: - would love to see final product #HAchat | |
| LifeUnbound | RT @wegohealth: Yes! RT @PurdueMocha: T4: You are not alone. It is OK to have all these emotions. Its OK to be you. #HAchat | |
| pamressler | Yes RT @serenebutterfly: RT @julianna12369: T4: I think that someones first intro to their dx should be hopeful, not frightening #hachat | |
| wegohealth | Great: MT @julianna12369: T4: First tip is, dont go looking for worst case info, look for those of us who live well daily w our DX #HAchat | |
| MakeThisLookAwe | T4: Do not take this personally. This is not punishment. No one deserves to get sick. It just happens sometimes. To more than most! #HAchat | |
| julianna12369 | YES RT @wegohealth: Agree! MT @serenebutterfly:T4: read blogs of other patients to see the real story instead of some horror stories #HAchat | |
| wegohealth | RT @TomKindlon T4: "Things work out best for those who make the best out of how things work out" #HAchat | |
| serenebutterfly | T4: For those trying to get a diagnosis, I would say hang in there - I had to wait around 17/18 years for one but got one in the end #hachat | |
| CIRants | MT @julianna12369: T4: First tip is, dont go looking for worst case info, look for those of us who live well daily w our DX #HAchat | |
| TiffanyAndLupus | T4: Understand that there is a dual side to all things. There IS laughter to be had even while we endure the tears. #HaChat | |
| LifeUnbound | RT @wegohealth: RT @TomKindlon T4: "Things work out best for those who make the best out of how things work out" #HAchat | |
| pamressler | T4 Are there ways that we, in healthcare, can support newly diagnosed by connecting them with others? #hachat | |
| KatharineS84 | T4: To go easy on yourself. Any diagnosis that alters your life takes time to adjust to. Talk about it. Ask for help. #HAchat | |
| julianna12369 | T4: TIP: surround yourself with comfort, not negativity. When they get you down, walk away... WALK AWAY #HAchat | |
| wegohealth | And T4.1: How can we, as Health Activists, work together to make newly patients feel comfortable no matter who/where they are? #HAchat | |
| TiffanyAndLupus | LOVE THIS, so TRUE!!! ~> RT @TomKindlon T4: "Things work out best for those who make the best out of how things work out" #HaChat | |
| KatharineS84 | T4: Remember that each patient is different. You CAN defy odds. And that optimism and hope are your best friends. #HAchat | |
| TiffanyAndLupus | T4: I like to encourage the newly diagnosed to reach out & speak out with the chronic 'veterans' in the patient community :) #HaChat | |
| CIRants | T4: Let yourself feel what you feel. Find the most supportive friends and family you have, and lean on them for support. #HAchat | |
| LifeUnbound | T4: If you feel distressed, please go to your nearest hospital, call a distress centre, talk to your doctor or seek counselling. #HAchat | |
| serenebutterfly | T4.1: I think WEGO Health is a great source for info and sign posts for other organisations or blogs for further information #hachat | |
| lauriepna | @ pam wrestler yes T4 lobby our governments for more finantial supports. #HAchat | |
| julianna12369 | t4: tip: don't think it won't work, give it a shot. If it worked for so many of us, give it a try...except crazy snake oil stay away #HAchat | |
| KatharineS84 | T4: In other words, your attitude has a big effect things. How you choose to react & live w/it is so important. #HAchat | |
| julianna12369 | @TiffanyAndLupus that is because you are beautifully brilliant and #chronicallyawesome my love #HAchat | |
| PurdueMocha | T4.1: I think giving people access to groups, whether online or in meat space, is important. #HAchat | |
| MakeThisLookAwe | Sometimes, things won't work out for the best. But we can #MakeThisLookAwesome, even if it is only to defy slowly dying! #HAchat | |
| TiffanyAndLupus | T4: It's important that we DO NOT minimize what we're going through to family, friends, or doctors. This HURTS our + health journey! #HaChat | |
| lauriepna | wegohealth provides a safe forum for patients to find information in a safe caring environment #HAchat | |
| julianna12369 | T4 Tip: get a few emails or numbers of GURU's to contact. I just got my new #EDS dx and found my EDS Mom right away to help. #HAchat | |
| LifeUnbound | Had fun participating in the #HAchat today, going to go head home now and read over everyones responses. | |
| TiffanyAndLupus | @julianna12369 As are you my sweets :) #HaChat | |
| julianna12369 | T4: Tip: the #chronicallyawesome are up all night and in all timezones. tweet and eamail at any hour, you will get an answer #HAchat | |
| wegohealth | MT @TiffanyAndLupus: T4: DO NOT minimize what were going through to family, friends, or doctors. This HURTS our + health journey! #HAchat | |
| julianna12369 | RT @lauriepna: wegohealth provides a safe forum for patients to find information in a safe caring environment #HAchat | |
| serenebutterfly | RT @lauriepna: wegohealth provides a safe forum for patients to find information in a safe caring environment #hachat | |
| KatharineS84 | I'm so excited to start using #chronicallyawesome! #HAchat | |
| julianna12369 | MT @TiffanyAndLupus: T4: DO NOT minimize what were going through to family, friends, or doctors. This HURTS our + health journey! #HAchat | |
| wegohealth | MT @julianna12369: T4: Tip: the #chronicallyawesome are up all night &in all timezones. tweet/email at any hour, youll get an answer #HAchat | |
| MakeThisLookAwe | RT @TiffanyAndLupus: T4: DO NOT minimize what were going through to family, friends, or doctors. This HURTS our + health journey! #HAchat | |
| CIRants | MT @TiffanyAndLupus: T4: DO NOT minimize what we're going through to family, friends, or doctors. This HURTS our + health journey! #HAchat | |
| julianna12369 | I am excited for you to use it! RT @KatharineS84: Im so excited to start using #chronicallyawesome! #HAchat | |
| PurdueMocha | RT @KatharineS84: I'm so excited to start using #chronicallyawesome! #HAchat | |
| TiffanyAndLupus | T4: There IS a difference btwn expressing our feelings & chronically whining. Please express yourself & find positive support! #HaChat | |
| serenebutterfly | T4.1 Maybe to provide newly diagnosed with leaflets about they can expect, info for further support and what they can expect #hachat | |
| julianna12369 | @KatharineS84 It's an umbrella of all chronic illness. You got it, it's chronic? Then it's awesome to us! #chronicallyawesome #HAchat | |
| TiffanyAndLupus | T4: What helps me keep a positive perspective w/lupus is this: If expressing something sad/negative, end it with a positive! :) #HaChat | |
| serenebutterfly | RT @KatharineS84 Its an umbrella of all chronic illness. You got it, its chronic? Then its awesome to us! #chronicallyawesome #hachat | |
| caitlin_cumming | RT @julianna12369 Its an umbrella of all chronic illness. You got it, its chronic? Then its awesome to us! #chronicallyawesome #HaChat | |
| ShyDi47 | @TiffanyAndLupus I know all about the #whiners sad part is they don't do anything about bettering themselves #Hachat | |
| lauriepna | i found "healthy M moods Magazine a great help, http://t.co/oSTDNt6G #HAchat | |
| serenebutterfly | Well have to go guys, thanks for the great chat - going to indulge in a guilty pleasure and watch CSI!! Take care everyone xx #hachat | |
| ShyDi47 | I sure came in late into this chat. #Hachat | |
| TiffanyAndLupus | T4: Just because we have to adjust our lifestyles post-diagnosis does not mean we can't still enjoy it. Find your NEW happy! #HaChat | |
| wegohealth | Well it’s about that time – great chat today everyone, thanks so much for coming! Final thoughts? #HAchat | |
| julianna12369 | @TiffanyAndLupus I have found more gifts since my DX then I ever would have imagined @wegohealth #HAchat | |
| mvennitti | So sorry I missed your chat today. Really wanted to join for the first time.
#HAchat | |
| TiffanyAndLupus | @ShyDi47 At the end of the day no one will live our lives for us. We're responsible for our own actions & the actions we don't take! #HaChat | |
| TiffanyAndLupus | RT @wegohealth: Well it’s about that time – great chat today everyone, thanks so much for coming! Final thoughts? #HaChat | |
| julianna12369 | RT @wegohealth: Well it’s about that time – great chat today everyone, thanks so much for coming! Final thoughts? #HAchat | |
| CIRants | Thanks for the great chat! #HAchat | |
| ShyDi47 | Even with all the negativity eventually something positive will come out of if. There is a light @ the end of the tunnel. #Hachat | |
| lauriepna | final thoughts , accepting help from others has always been hard for me but now I try it #HAchat | |
| ShyDi47 | So sorry looks like I missed a great chat. #Hachat | |
| julianna12369 | Final Thoughts: We choose the label we want to carry, we walk the life we want to walk. Our limits are our own. We make our rules. #HAchat | |
| PurdueMocha | Final thoughts: #chronicallyawesome, #spoonie ...I'm learning new terms from awesome people! #HAchat | |
| TiffanyAndLupus | Final Thoughts: Take responsibility for your own health, life, and results. Positive actions reap positive results regardless of dx! #HaChat | |
| KatharineS84 | This was probably one of my favorite chats. Gets to the heart of what the #chronicallyawesome deal with. Thanks all! #HAchat | |
| mvennitti | I found you that is a positive in my life.
#HAchat | |
| julianna12369 | @PurdueMocha Welcome to Team #chronicallyawesome, the never say NO WAY, people of all chronic lifestyles! #HAchat | |
| wegohealth | Just a reminder: we will have Health Activist Tweetchats every Tuesday on 3pm ET here – so follow @wegohealth & invite your friends. #HAchat | |
| MakeThisLookAwe | Final thoughts: I am grateful for my disease, as it has led me to a community that is truly caring and compassionate. TY everyone! #HAchat | |
| TiffanyAndLupus | That's the way to do it & think, love it :) RT @mvennitti: I found you that is a positive in my life. #HaChat | |
| ShyDi47 | @lauriepna #accepting help can be difficult for sure it can hurt your #dignity. #Hachat | |
| julianna12369 | RT @KatharineS84: This was probably one of my favorite chats Gets to the heart of what the #chronicallyawesome deal with. Thanks all #HAchat | |
| TiffanyAndLupus | RT @julianna12369: @TiffanyAndLupus I have found more gifts since my DX then I ever would have imagined @wegohealth #HAchat | |
| TomKindlon | RT @lauriepna: final thoughts , accepting help from others has always been hard for me but now I try it #HAchat | |
| wegohealth | Next week’s chat will kick off our June theme – Health Technology! Be ready to talk: apps, devices, EHRs, virtual medicine & more! #HAchat | |
| julianna12369 | RT @wegohealth: Just a reminder: we will have Health Activist Tweetchats every Tuesday on 3pm ET here – so follow @wegohealth #HAchat | |
| Craig_J_85 | @KatharineS84 Loving the #cysticfibrosis #HAchat tweets. A lot of us can certainly relate to them. | |
| julianna12369 | I can't believe I almost missed this chat. Thanks @hotelqueen for poking me in the dislocated rib! #HAchat | |
| MakeThisLookAwe | RT @KatharineS84: This was probably one of my favorite chats Gets to the heart of what the #chronicallyawesome deal with. #HAchat | |
| julianna12369 | RT @wegohealth: Next week’s chat will kick off our June theme – Health Technology! apps, devices, EHRs, virtual medicine & more! #HAchat | |
| TiffanyAndLupus | @MakeThisLookAwe You know some would call us crazy! But I feel the same. I regret nothing I've gone through in life. Not even lupus! #HaChat | |
| JBBC | MT @wegohealth: Next week’s chat will kick off our June theme – Health Technology! #HAchat | |
| MakeThisLookAwe | @TiffanyAndLupus It took me a long time to come to peace with my disease, but I finally have. It's a great place. #HAchat | |
| MakeThisLookAwe | RT @wegohealth: Next week’s chat, June's theme – Health Technology! Be ready to talk: apps, devices, EHRs, virtual medicine & more! #HAchat | |
| KatharineS84 | MT @MakeThisLookAwe I am grateful for my disease, as it has led me to a community that is truly caring & compassionate. TY everyone! #HAchat | |
| TiffanyAndLupus | Seriously I cannot thank @wegohealth enough for their awesomeness. Every week #HaChat never ceases to amaze me! Kudos A. | |
| ElysiaCG | RT @wegohealth: RT @TomKindlon T4: "Things work out best for those who make the best out of how things work out" #HAchat | |
| mvennitti | @MakeThisLookAwe @TiffanyAndLupus Just found you on #HAchat. What a great group of people. Love..I'm#chronicallyawesome. #raredisease | |
| ElysiaCG | RT @julianna12369: T4: TIP: surround yourself with comfort, not negativity. When they get you down, walk away... WALK AWAY #HAchat | |
| MakeThisLookAwe | @mvennitti Nice to meet you! This is a great group. May I ask, what's your #raredisease? #HAchat | |
| ElysiaCG | @julianna12369 @TiffanyAndLupus #HAchat but they don't believe, come up with all these crazy ideas as to what u could hv, stop talking to u, | |
| ElysiaCG | @julianna12369 @TiffanyAndLupus #HAchat I hv only so much energy & what they do hurts, I don't hv it to educate them :/ | |
| MakeThisLookAwe | @mvennitti Wow... that's a handful! I've got #AutoimmuneHypophysitis a fancy term for pituitary autoimmune disease #HAchat | |
| FeliciaFibro | Dealing with my annoying insurance for an hour led me to forget about the #hachat! Boo! Realized it just as it ended. #spoonie #fibro | |
| TiffanyAndLupus | @ElysiaCG @julianna12369 It may hurt, but illness also teaches us who are REAL family/friends are. This is a double-edged sword. #HaChat | |
| TiffanyAndLupus | @ElysiaCG @julianna12369 We must learn to let go of those that hurt us & embrace those that show us love. #HaChat | |
| TiffanyAndLupus | @ElysiaCG @julianna12369 Educate, because we have that knowledge. Then it is up to them to comprehend/accept. #HaChat | |
| TiffanyAndLupus | @ElysiaCG @julianna12369 & know that if they react negatively it is NOT a reflection of the beautifully kind person you are. #HaChat | |
| ZHeatherChamp | @KatharineS84 @makethislookawe What is #hachat? Thanks! cc: #raredisease | |
| MakeThisLookAwe | @ZHeatherChamp #hachat is Health Activist chat, a TweetChat event hosted by @wegohealth every Tues 3p EST | |
| CreativeCrip | RT @wegohealth: T1.1: What’s the difference between how you see yourself pre-diagnosis and post-diagnosis? #HAchat | |
| fibroaction | RT @wegohealth: Always great to re-share this! Thanks RT @CIRants See this for the spoon theory http://t.co/yomBqyGN #HAchat | |
| pueblokc | RT @wegohealth: Always great to re-share this! Thanks RT @CIRants See this for the spoon theory http://t.co/yomBqyGN #HAchat | |
| mvennitti | @ZHeatherChamp Follow #chronicallyawesome for empowering attitudes from chronically ill patients. Also follow #HAchat for education. |
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